Pain seems to be more related to autonomic issues than mobility issues in a new Parkinson’s Disease pain study. And by extension, it seems likely that’d be the same with Lewy Body Dementia.

Many, if not most, people with Lewy Body Dementia have Parkinsonism mobility issues. Pain, of an often inexplicable source is very common, and has often been believed to be related to lack of mobility from the condition. However, this study concludes that perception of pain is mostly related to central nervous system issues. This implies that for the same pathology (such as osteoarthritis) two people with the same degree of arthritis can sense pain very differently.

Other findings in the research also included the following:
  • There was no correlation between musculoskeletal pain and motor symptoms
  • There was also no correlation between radicular pain (radiating from the spine to extremities) and motor symptoms
  • Very weak correlation between lower abdominal pain and constipation scores
This is an interesting study, and runs counter to much traditional thinking. Since pain is a very common, debilitating aspect of the condition, this will hopefully lead towards improved treatments.

Get as much exercise as possible, and as is safe and approved by a specialist. There are few situations when it will be bad, and even if it doesn’t fix all the pain issues, it will aid in sleep improvement. It also usually leads to better mood and any method of maintaining as much mobility and flexibility is beneficial.

Note: the link to the full article requires you to register.
Strength to all! Timothy Hudson



Pain with Lewy Body Dementia and Parkinson’s Disease centrally regulated

3 thoughts on “Pain with Lewy Body Dementia and Parkinson’s Disease centrally regulated

  • May 24, 2020 at 3:28 pm

    Looking for pain relief for my husband with LBD diagnosis.

    • May 24, 2020 at 5:19 pm

      Hi Sheryl: Sorry for the trouble you’re having finding effective pain relief.

      I’m not a doctor, so I’m not recommending anything, only relating my personal experience as a carer. The downsides of so many pain medications are significant, and the one that was most significantly, immediately apparent was the constipation they caused. Digestion and effective processing of nutrition is often very difficult, and this makes for many challenges. I found that Acetominophen worked very well for my mom, and if used as prescribed, was extremely effective — and that surprised several doctors, who thought she’d need some much stronger pain killers for some quite severe trauma.

      And early on, she had positive results from Acupuncture, although we didn’t continue it because getting her to the practitioner became infeasible.

      I hope you can find things that work for you! You’re doing a very good thing for your husband, as a loving partner, and effective advocate.

      Strength to you!
      Timothy Hudson

  • September 20, 2020 at 9:23 pm

    I was diagnosed with Lewybody several weeks ago.
    I just have no desire to get dressed. I just want to wear my pajamas.
    I have a husband, who is a Pastor, who also has ADHD, and is a narcissist, so now you know what I’m under. So let me say he is a very very busy man.
    So if i didn’t have a daughter who works with the family Fire Department and is a Paramedic. I would be alone, but she is such a great help! All of this is new to me and scary.
    Thank You, KDH.


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