Pain seems to be more related to autonomic issues than mobility issues in a new Parkinson’s Disease pain study. And by extension, it seems likely that’d be the same with Lewy Body Dementia.

Many, if not most, people with Lewy Body Dementia have Parkinsonism mobility issues. Pain, of an often inexplicable source is very common, and has often been believed to be related to lack of mobility from the condition. However, this study concludes that perception of pain is mostly related to central nervous system issues. This implies that for the same pathology (such as osteoarthritis) two people with the same degree of arthritis can sense pain very differently.

Other findings in the research also included the following:
  • There was no correlation between musculoskeletal pain and motor symptoms
  • There was also no correlation between radicular pain (radiating from the spine to extremities) and motor symptoms
  • Very weak correlation between lower abdominal pain and constipation scores
This is an interesting study, and runs counter to much traditional thinking. Since pain is a very common, debilitating aspect of the condition, this will hopefully lead towards improved treatments.

Get as much exercise as possible, and as is safe and approved by a specialist. There are few situations when it will be bad, and even if it doesn’t fix all the pain issues, it will aid in sleep improvement. It also usually leads to better mood and any method of maintaining as much mobility and flexibility is beneficial.

Note: the link to the full article requires you to register.
Strength to all! Timothy Hudson



Pain with Lewy Body Dementia and Parkinson’s Disease centrally regulated

7 thoughts on “Pain with Lewy Body Dementia and Parkinson’s Disease centrally regulated

  • May 24, 2020 at 3:28 pm

    Looking for pain relief for my husband with LBD diagnosis.

    • May 24, 2020 at 5:19 pm

      Hi Sheryl: Sorry for the trouble you’re having finding effective pain relief.

      I’m not a doctor, so I’m not recommending anything, only relating my personal experience as a carer. The downsides of so many pain medications are significant, and the one that was most significantly, immediately apparent was the constipation they caused. Digestion and effective processing of nutrition is often very difficult, and this makes for many challenges. I found that Acetominophen worked very well for my mom, and if used as prescribed, was extremely effective — and that surprised several doctors, who thought she’d need some much stronger pain killers for some quite severe trauma.

      And early on, she had positive results from Acupuncture, although we didn’t continue it because getting her to the practitioner became infeasible.

      I hope you can find things that work for you! You’re doing a very good thing for your husband, as a loving partner, and effective advocate.

      Strength to you!
      Timothy Hudson

  • September 20, 2020 at 9:23 pm

    I was diagnosed with Lewybody several weeks ago.
    I just have no desire to get dressed. I just want to wear my pajamas.
    I have a husband, who is a Pastor, who also has ADHD, and is a narcissist, so now you know what I’m under. So let me say he is a very very busy man.
    So if i didn’t have a daughter who works with the family Fire Department and is a Paramedic. I would be alone, but she is such a great help! All of this is new to me and scary.
    Thank You, KDH.

    • October 23, 2021 at 5:00 am

      Hi. My name is Vera and my husband was just diagnosed with Lewy body disease and Parkinsonism. I am just trying to take it all in.
      I hope you got out of your pajamas .
      How are you feeling today?

    • August 14, 2022 at 12:37 am

      The girl below says she hopes you got out of your pajamas and I’m absolutely positive that she meant well. My mother has Louis body dementia and I hope that you’re doing okay hope that you do whenever you want to do If it is stay in your pajamas then stay in your pajamas. I was at home last year around the time that you wrote this and mom had an accident and went to the trauma unit in Cleveland Ohio. After that she had to go for rehab. She is on Medicare so that meant to stay at the local nursing home. But I have already noticed she preferred to be in her pajamas So I bought her a wardrobe of pajamas and made sure that she had little jackets from clothes that she already had mostly and turtlenecks so that she could wear the pajama bottoms with a regular top and one of those little jackets if she wanted to go somewhere She looks really cute and she’s warm and comfortable she also has ankylosing spondylosis and is in a lot of pain so I hope you do whatever you want I hope you are comfortable and warm I hope you live in the south so you don’t have to face unbearable cold like my mom. I wish your circumstances were better or that I could coach you to do something differently.

      • February 11, 2023 at 12:57 pm

        I love everybody on here and I wish I could give everyone on here a big hug. I love y’all from the bottom of my heart. My dad has LBD and I’m helping him and raising my son by myself. My little son is 3 years old and cheers me up because he is so funny. It’s a lot of work for everyone but it is well worth it.

        I just wanna say again that I love y’all all so much.

        Big hugs and kisses from Daniel and Nehemiah.

        • February 19, 2023 at 11:23 pm

          You’re doing an amazing thing, Daniel, helping your dad with LBD alone would be a huge undertaking, but raising a young son at the same time is superhuman. Long may the funny antics of your son cheer you all up.
          Strength and courage to you.
          Timothy Hudson


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