Learn At Your Own Pace With Carefully Curated Videos About Lewy Body Dementia
Each and every one of these Lewy Body Dementia videos is helpful and informative. I vouch for them personally.
Suggest other videos that should be featured here.
- Videos at the top of this page deal with the condition itself, from a more scientific perspective.
- Lower down, you’ll find tips and techniques for dealing with specific elements of Dementia with Lewy Bodies.
Understanding Lewy Body Dementia: Dr. Bradley Boeve
1.5hrs long | 2018-10-23 | University of Michigan
Dr. Boeve is the Little Family Foundation Professor of Lewy Body Dementia, in the Department of Neurology at the Mayo Clinic, and is a recognized expert on LBD. This long presentation covers a broad range of content, and uses his live, on-camera presentation mixed with his presentation graphics.
The Reality of LBD – Hallucinations & Delusions & How to Manage Them
1 hour long: slide visuals with narration; includes Q&A session after presentation.
Dr. James Galvin’s presentation touches on many aspects, how to manage these difficult behaviours, potential medications, etc. He covers the following areas:
- Hallucinations and Delusions are common in LBD
- New emergent symptoms require a medical evaluation
- Not all behaviors require medication
- Non-pharmacological approaches should be first line
- If starting a medication, know all there is to know about that medication
- Start at lowest dose, increase doses slowly, constantly re-evaluate
- New medications are being tested that specifically target hallucinations in
New drugs, psychosis, and an overview of Lewy Body Dementia vs. Parkinson’s Disease Dementia
9 minutes long, 2017-05-09
Great new interview with University of Florida’s Dr. Melissa Armstrong. Clearly describes several elements of Lewy Body Dementia (LBD), including how this dementia is an umbrella term that includes both Parkinson’s Disease Dementia (PDD) and LBD. She clarifies that Lewy Body “Disease”, is the pathology, rather than the condition and its symptoms, the protein that builds up in the brain.
> Psychosis is a spectrum: hallucinations is the most common. It may also include illusion, where it’s more of a misinterpretation, a sense of presence or passage of another close by, when nobody is there, etc.
> Doctors should not always treat the condition. Medications have risks, most people with LBD are already on many medications. If the psychosis is affecting their quality of life by fear. If it affects safety by investigating or reacting to hallucinations, then treatment is used.
> Anti-psychotics commonly used for LBD include Clozapine and Quetiapine. New drug Pimavanzserin was approved by FDA, but there was only one study, and was with PD with psychosis: it does not mean it’s technically applicable with LBD.
New drugs being tested include: Nelotanserin is a similar drug, study underway for LBD; RVT101 for memory and thinking and walking; and a new treatment for REM Sleep Behaviour Disorder. There are lots of trials for LBD drugs underway, but none are yet FDA approved.
Overview of Lewy Body Dementia
one hour long (2013).
Lecture presentation by Geoff Kerchner, MD, PhD, Neurologist and Neuroscientist at Stanford’s Center for Memory Disorders and Stanford University School of Medicine.
The Spectrum of Lewy Body Disease
one-hour presentation tells of how Lewy & Parkinson’s are on the same spectrum.
Presenter(s): Mario Masellis (MSc, MD, FRCPC), Clinician-Scientist & Consultant Neurologist for Sunnybrook Health Sciences Centre at the University of Toronto. I can personally vouch for his excellent understanding of Lewy Body Dementia. This presentation is thought provoking and very useful for understanding many aspects of the condition from a professional deep in the most current research.
What is Lewy Body Dementia?
Learn with dementia expert Teepa Snow.
A quick, but very helpful perspective from the exceptional Pines Educational Institute of Southwest Florida.
Short and clear Australian video “What is Lewy Body Disease”
In just a couple of minutes, the narrator covers the key features of Lewy Body Dementia, and differentiates aspects from Alzheimer’s Disease, and places it on the spectrum with Parkinson’s Disease. A great primer.
Simplified, 4-minute overview of Lewy Body Dementia
Somewhat over-simplified, but still a useful primer into the condition — delivered at a machine-gun pace. It is not focused on the late actor Robin Williams, but his death was the catalyst that raised awareness of LBD in 2014 and inspired this clip.
What is Dementia
These 2 videos are the best and simplest explanations I have seen on how neurons transmit signals in the brain, how the brain cells communicate, what effects dementia has on that specific process, how drugs can improve specific aspects, and how the improvements may be apparent. Watch both clips, part 1 and 2 (should auto play)
Tips and Tricks Videos for Dealing with Lewy Body Dementia.
Using Improvisational Theatre Techniques to Improve Quality of Life with Dementia
10 minute TEDMED talk and demonstration about how best to connect, and keep connected with a person with Lewy Body Dementia.
This 2016 clip is equally applicable for any type of dementia, even though they talk about Alzheimer’s. In it, improv artists Karen Stobbe and Mondy Carter share how they use the rules of improvisation to break through conventional caregiving techniques and open up new worlds for persons with dementia.
They use the following rules to help interaction. They definitely help!
- Say “Yes and…”
- Agree, don’t deny
- Accept offers and gifts
- Be specific
- Listen fully
- Go with the flow
- Accept the reality given to you
- Silence is powerful
- Share focus, give and take
- Commit 100%
- Be in the moment
Deescalating a crisis, with a 10-step process.
This five minute Teepa Snow suggests the following steps:
1. Remove the threat
2. Create space
3. Get on her/his side
4. Get at or below eye level
5. Use Hand Under Hand™
6. Breathe in sync
7. Calm your voice
8. Relax your body
9. Attend to her/his needs
10. Be willing to go where he/she is
If you’re interested, have a look at the whole article.
Teepa Snow shows how to approach from the person’s dominant side, away from where they’re looking, but not from behind. Come into their personal space when allowed by the person experiencing the hallucination. Repeat what the person says, to show you have heard them, but turn their statements into a question. Take the responsibility for whatever is upsetting them away, so the person can relax, and be redirected.
Reduce anxiety and agitation from hallucinations takes awareness and practice.
Get more hands-on tips from an Alzheimer’s website that has great LBD-relevant pointers to reinforce going with the flow, including the sequence below:
- approach the PLWD’s preferred side
- verbally greet the PLWD
- move into PLWD’s personal space when invited
- use Hand Under Hand™
- take control of the situation
- allow the PLWD “off the hook”
- go with the flow
- repeat/agree/validate as required
Understanding movement problems in Lewy Body Dementia, and how to help
Limited and difficulty moving is a hallmark symptom of dementia with Lewy Bodies. How to manage those issues can be very difficult. Understanding how the brain processes automatic reactions vs understood directions is critical to successfully managing movement issues. This excerpt of a longer video by Teepa Snow gives great insight.
Helping a person to sit down safely with Parkinsonism from Lewy Body Dementia
Good visual examples of how to help a person sit down, safely and effectively. This is not as easy as it may sound if a person has the rigidity of Parkinsonism that usually accompanies LBD, and cognitive and perception issues as well. Teepa Snow does a characteristically good presentation, and it’s very topical if this is something you struggle with, for a toilet, chair, bed, automobile, and more. Learning to help a person sit down safely may be much more challenging than to get them to stand!
Brushing Teeth For A Person with Dementia.
Great tips and non-threatening methods to approach this difficult task.
Making sure that your loved ones’ teeth are brushed every time after eating will significantly lower the potential of aspiration pneumonia.
With clean teeth, no food particles will be swallowed. Avoiding infections is paramount to ongoing quality of life. Another great clip by Teepa Snow.
Anti-psychotic Drugs and Lewy Body Dementia: Avoid them!
This is another great Teepa Snow video that has a full overview of LBD, but the key here is the last couple of minutes in which she discusses drug treatments, the contrary reactions some may elicit, and the potentially deadly or disastrous outcomes of using some drugs, particularly traditional antipsychotics.
The video is set to start to the drug section at 6:20, but if you’re interested, the whole video is great, and you may want to watch it from the beginning.
Another awesome learning tool from the Pines Educational Institute of Southwest Florida.
Additional Videos of Potential Interest.
Powerpoint Presentation with Voice-over Narration
This 9 minute presentation covers elements of Lewy Body Dementia, Parkinson’s Disease and Alzheimer’s Disease. You may find it a little disjointed, but a fair bit of scientific and neurological information is presented.
Robin Williams Lewy Body Dementia post-mortem and investigation (5 minutes)
Forensic report and dramatic (perhaps overly-dramatic) coverage of investigation into comedian Robin Williams’ autopsy, where several elements of Lewy Body Dementia are described. This might be a good, easily accessible introduction for people less familiar, and who would prefer a television-style presentation. The clip is taken from “Dr. Richard Shepherd’s Autopsy: The Last Hours of Robin Williams.”
Archived video webinars on Lewy Body Dementia from UCSF
The University of California San Francisco’s Weill Institute for Neurosciences has a series of great, hour-long webinars that are archived and worthwhile. Their videos are available in a playlist below or on YouTube.
More videos to come……stay tuned.
Strength to you!
Updated May 13, 2020