Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.
Seems that a familiar environment, no matter how seemingly disorganized or dense, is better than one that's minimalist and spartan, if that's what a person with dementia is used to. Although the researchers were surprised, it doesn't surprise me at all. Routines seem to be of immense importance, consistency and familiarity equally so.
- An interesting perspective with some data to back it up. Useful sometimes, when people are trying to strong-arm you into changing things to a way they believe is better for you. We had this numerous times, and contrary to conventional wisdom of every single occupational therapist that visited our home, the so-called clutter had benefits (and lots of overstuffed furniture also prevented many a more-catastrophic fall).
- Strength to all! Timothy Hudson
Learning resources are always welcome. The Parkinson's Foundation has a great wealth of very useful information in many formats, from booklets to podcasts. And all are FREE.
- You can do a search on this page, and just doing a quick one using the phrase "Lewy" brought up a great variety of topics. And with Parkinsonism symptoms being such a core feature, and challenge for most who are living with Lewy Body Dementia, all the reliable help and tips we can get are welcome.
- Strength to all! Timothy Hudson
Falls are common in people with Lewy Body Dementia, and it appears tgat the way a person walks can be an indicator of the condition before other symptoms are revealed and a diagnosis given. The “LBD walking style” can even be differentiated both from Alzheimer’s disease
- For anyone familiar with more advanced progression, this may not be so surprising, since there are many Parkinsonism aspects shown in gait.
- anything to improve diagnosis, especially early diagnosis is welcome! Strength to all. Timothy Hudson
Parkinson's and Alzheimer's diseases can frequently occur together, as they do often with Lewy Body Dementia. This is why getting a definitive diagnosis is typically so challenging: the relative impacts of different neurological conditions can vary in their dominance at different times, and overlap, interact, and create uncertainty.
Parkinson’s disease and Alzheimer’s disease are each not uncommon, and they occur with advanced age. It can be extremely stressful to learn that you or a loved one has one or both conditions.
- This article deals with PD and AD. It has some good content, although I don't agree with all of it. A very decent primer on the common elements and differences.
- Including, "The memory and behavioral changes can often be confusing—you might not know whether symptoms are caused by the disease, medication side effects, or another problem (like an infection).....and....If you or a loved one has been diagnosed, it’s important that you use all the resources available to you—social work, home health, physical therapy, occupational therapy, nutritionist—to have the best quality of life possible."
- Strength to all! Timothy Hudson
A good primer for people new to Lewy Body Dementia, or for explaining to others what it's about, when you don't wish to do all the explaining yourself.
- Useful "takeaways" include "about 80% of people diagnosed with LBD experience recurrent visual hallucinations....which are often recurrent and very detailed, and typically appear as adults, children or animals.....but because psychiatric symptoms are experienced early in the disease process, many patients are often misdiagnosed with a psychiatric disorder"
- "LBD often gets confused with Alzheimer’s but with LBD, changes in attention span and alertness are usually the first noticeable signs, whereas people with Alzheimer’s typically first experience their memory decline" and "
- Strength to all! Timothy Hudson
Lewy Science: A Leukemia drug, nilotinib (Tasigna) has had some time in the spotlight over the past few years, with mixed opinions in various areas. A new study (that may have potential influence by the funders), still shows an interesting perspective, implying that Parkinson's Disease has a very important vascular aspect, beyond the misfolded alpha-synuclein proteins (Lewy Bodies).
- From the article, "Not only does nilotinib flip on the brain’s garbage disposal system to eliminate bad toxic proteins, but it appears to also repair the blood brain barrier to allow this toxic waste to leave the brain and to allow nutrients in. Parkinson’s disease is generally believed to involve mitochondrial or energy deficits that can be caused toxic protein accumulation; it has never been identified as a vascular disease.. To our knowledge, this is the first study to show that the body’s blood brain barrier potentially offers a target for the treatment for Parkinson’s disease. Much work remains to be done, but just knowing that a patient’s brain vascular system is playing a significant role in the progression of the disease is a very promising discovery.”
- Time will tell........but different approaches are certainly welcome, since the viable treatments are so very minimal.
- Strength to all! Timothy Hudson

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018