Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.
"Lewy Body Diseases"
- There's increasing interest in reframing and renaming Lewy Body Dementia, Parkinson's Disease, and Parkinson's Disease Dementia so they'd all be under one overarching name, Lewy Body Diseases.
- From the article, "Molecular-genetic data indicate that not only in PD but also in DLB, a unique genetic architecture can be ascertained, predisposing to the development of specific disease phenotypes. The presence of LBs thus remains only a kind of link between these disorders, and the term "diseases with Lewy bodies" therefore results somewhat more accurate. "
- Here's hoping for increased attention on this, since the funding for Parkinson's Disease seems significantly higher, and certainly its public profile is much more widely known.
- Strength to all. Timothy Hudson
Misdiagnosis, and inexplicable symptom groupings are not uncommon with Lewy Body Dementia. Here's an example I was first introduced to by awesome care partner and tenacious advocate Rich Babcock, as he grappled with his wife's perplexing condition. Fortunately, her symptoms have improved drastically, but her own description of her experience is both insightful and harrowing.
- It's a hopeful tale for what is, for many, a darker period: appropriate for this time of year. Strength to all, and may your holidays be blessed in meaningful ways. Timothy Hudson
Woman's medical journey leads to Lewy Body Dementia diagnosis.Stay informed about Columbus and central Ohio news, weather and sports! Follow NBC4 on our webs...
Interesting that a family of doctors and a Med school student was subjected to the same terrible experiences that many others do. Dehydration, delirium, the works. But it led to tge student specializing in tge neurology of LBD so perhaps there’s a silver lining.
- An interesting read, and I’m happy to see increased interest in diversity in research.
- Strength to all! Timothy Hudson
Lewy Science. Interesting autoimmune treatment potential coming from recent studies.
- “T cells, which are key players in the body’s immune system, may be involved in the degeneration of neurons in Lewy body dementia, according to an NIA-supported study. Researchers at Stanford University and Northwestern University identified how a certain type of T cell, which is involved in autoimmune diseases, may travel to the brain to destroy neurons. The findings, published Nov. 12 in Science, suggest that drugs already used to treat certain autoimmune diseases may block this undesired T-cell activity”
- Here’s hoping for some new, effective treatment options! Strength to all. Timothy Hudson
Happy Holidays! It's worthwhile considering how to make them the happiest possible. It isn't always just going with tradition, but perhaps focusing on the elements that'll work best for an individual with LBD: and that, sometimes, is very quiet, consistent, and calm. The "miracle of Christmas" can still be experienced with very different rituals.
- Excellent article says "encourage families to think through events ahead of time, temper the size of gatherings, and consider amending traditions for minimal confusion and chaos."
- Keep the current realities front-of-mind, rather than trying to desperately maintain every element of tradition. The goal is to have a wonderful holiday, not one where things are overwhelming.
- Strength to all! Timothy Hudson
Do whatever is possible to reduce stress! Not surprisingly, it worsens Parkinson's Disease (PD) symptoms for people with PD, and I expect this is the same with LBD, since the root cause is the same. And I certainly witnessed how even very mild stress caused extreme anxiety, concentration issues and tremor.
- From the article... "People with PD scored significantly worse than those without PD in nearly every category, including anxiety, perceived stress and depressed mood" ...and... "worsened all PD symptoms ... including sleeping problems, depression, dyskinesia (involuntary movements), freezing of gait (feeling stuck in place), and bradykinesia (slowness of movement). Participants with with higher stress levels ruminated more, scored lower on quality of life, lower in dispositional mindfulness and lower in self-compassion." They... "also added to the list of stress symptoms cognitive impairment, loss of focus, confusion, impaired executive function, speech and communication issues, emotional symptoms (anger and frustration, anxiety, nervousness, and apathy, and pain)."
- Stress management methods with best success were:
1. Exercise (walking, cycling, swimming, sports, yoga, Pilates, or Tai Chi) was most frequently used to reduce stress (83.1%) – with beneficial effects reported on all motor and non-symptoms.
2. Mindfulness was linked to improvements in both motor and non-motor symptoms — most notably 60.2% noticed improvement in depression and 64.7% in anxiety.
- One obvious difficulty is that Mindfulness is difficult to practice for a person with cognitive impairment, but it may help carers, as well as anyone earlier in the LBD process.
- Strength to all! Timothy Hudson

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018