The Lewy Body Podcast Playlist: Listen At Your Convenience.
Some people might prefer to have the articles and posts available to listen to as a “podcast” rather than a text document, so I am testing this by including several of them below. You can either listen to them here, or download them. And you can always read them as text on the main Tips Blog page as well, which will be the most up-to-date.
The sound quality is not perfected, but if this feature is found to be useful by website visitors, I will significantly improve it, and add to it.
Listen to the Lewy Body Podcast playlist below.
The goal of this website is to provide the most important information to help your journey with Lewy Body Dementia the best it possibly can be. There is an additional focus to provide information for people who are new to the world of Dementia with Lewy Bodies, and Parkinson’s Disease Dementia. If you have any thoughts on the sound files, or suggestions for topics and posts — I welcome any you may have. I want to make sure the content of this site is as pertinent and high-priority as possible.
I do not record every article as soon as it’s done, but wait until I have incorporated any suggestions or edits to make each piece the best it can be. The articles take a long time to research, write, and edit. The recording is only done when a piece has been effectively and comprehensively edited for clarity and utility. This means that you can usually read newer information as an article long before its recorded for this Lewy Body Dementia Podcast series.
Hoping these provide useful information, and are in a format that is helpful to you!
Additional podcasts of interest
Perspectives on dementia caregiving and the many difficulties carers experience in this 53-minute clip that features perspectives from the carers themselves, and insights from Dr. Pauline Boss. Sometimes its good to hear that others are experiencing things just as you are — even if you’re not sharing the road in person, you are certainly not alone. It touches on being forced to accept responsibilities that were traditionally those of your loved ones; added difficulties of caring for someone you had a difficult relationship with in the past; “my loved one is here, but they’re also gone”; there are no greeting cards for this kind of condition; why it’s hard for people to visit; the look in the eyes; with cancer, the community around the person grows, but with dementia, the community grows — there’s an implication that having the condition is embarrassing; the conditions of caregiving almost exactly mimic the diagnostic criteria of depression; two out of three carers experience depression, it’s amazing that the other third does not; (Pauline Boss at 17:23) — MORE info to come…
Professor emeritus at the University of Minnesota, Pauline Boss, contends that in many cases grief does not ever really provide “closure” and that the often-referenced “five stages of grief” are misleading. A quote of hers that will be poignant for many people dealing with Lewy Body Dementia is “with ambiguous loss, there is no closure. The challenge is to learn how to live with the ambiguity.”
This 50-minute podcast by Dr. Boss — who coined the term “ambiguous loss” presents a compelling case.
Strength to you!
Updated June 23, 2017