Learn About Lewy Body Dementia
For how common it is, Lewy Body Dementia (LBD) is almost completely unknown. It is also under-diagnosed, misdiagnosed, and misunderstood: these realities lead to needless, tragic outcomes.
Many of its disturbing symptoms can appear and then vanish as if they were never there, making the diagnosis of dementia with Lewy Bodies very difficult. This form of dementia has unique, life-threatening risks and requires very careful treatments and medications. However, the information and techniques you need to know most is not overly complex, and is simply presented here to be easily understood by anyone.
With knowledge gained from this site, anyone can make a huge difference in the life of a person with LBD. You can also make your own life much less tumultuous. The newly developed information on this website constantly monitors research, developments and innovations to provide the most up-to-date information.
Everything on the website is written by, and from the perspective of, a family care partner. It is updated regularly and is constantly growing and evolving, and the curated Facebook feed is very actively maintained. An ever-greater range of Lewy-specific content is being rolled out with a focus on solutions, tips, techniques and precautions.
Although much of the information is appropriate to all forms of dementia, the information provided is specifically and carefully developed to aid those caring for, and those diagnosed with, Dementia with Lewy Bodies and Parkinson’s Disease Dementia. This will be the best, most trusted online resource in Canada for Dementia with Lewy Bodies, with unmatched benefit for people worldwide.
There is broad-scope information for those newly diagnosed and articles on specific, individual topics, as well as where to get help and support and carefully curated collection of online Lewy Body Dementia resources with descriptions.
Recent and Popular Articles
The most popular article to date lists the Top 10 Priorities following a Diagnosis of Lewy Body Dementia. The most recent article is on an area I am very conflicted about — because of the unpredictability of the condition — categorizing stages of Lewy Body Dementia. The last podcast was on Ambiguous Loss, which we all experience as our loved one is cognitively absent, but physically still here. Dental health is a big issue, so one was recently published on tips and techniques to brush teeth at every stage and avoid countless problems, with another one two weeks earlier on how to choose a dentist and what to do to make the most of dentist appointments.
News and Articles Summarized on Facebook. NEW
Lately, due to unforeseen life changes, I have dedicated time to social media and curating rather than new article publishing. That means the new Facebook page is very active, with new content summarized daily. It’s all Lewy-related, and covers everything this website does — but unlike any other Facebook publisher I know of, I personally read every single article that goes up, and put my own concise summary at the top of the post, so you know whether it’s of interest to you, before you click on it. You don’t have to use Facebook to see the posts. If you would like periodic and useful, but not overwhelming info on Lewy, please like the page Facebook.com/Lewy.ca to keep stay informed. You can also view the most recent posts right here on this website, and you do not need to be a member of Facebook to see the posts.
Topics and editorial requests are always welcome: contact me here.
Strength to you!
Updated May 7, 2017.