Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca1 day ago
Thinking freely about what may create beharviors is tough, but helpful. Skip the article, but consider this as a “takeaway”: the loss of the ability to knit, or use utensils may have more of an impact on someone than the loss of the ability to walk, and knowing this may help you both understand and make the most of a situation.
> It’s easy to apply your own standards and expectations to a person with dementia, but it may be completely misguided. I know that I often misunderstood what was bothering my loved one, by applying what would bother ME to the issue — rather than being open to what might be at the root of her frustrations or anxiety. These can be physical, emotional or psychological -- or a combination. As much as possible, keep an open mind, and avoid assumptions — and what was the root cause of a behaviour one day may have no connection whatsoever, positive or negative, the next, particularly with a highly fluctuation condition like Lewy Body Dementia.
Strength to all! Timothy Hudson
https://www.verywell.com/caregiver-abuse-is-it-caused-by-illness-or-personality-3985309
LewyBodyDementia.ca
LewyBodyDementia.ca3 days ago
Lewy Science: a common asthma drug appears to show promise in reduction of LBD-causing Alpha-synuclein proteins. Researchers reported that use of the common asthma drug salbutamol (also called albuterol) was associated with a steep decline in risk for development of Parkinson's disease in a population-wide prescription database from Norway.
> Treatment with salbutamol was associated with a steep decline in risk for development of PD in a population-wide prescription database from Norwa, reduces expression of alpha-synuclein, the protein at the core of Lewy bodies in Parkinson's disease (PD), and improves neuronal survival in several preclinical models.
> Interesting since this seems to be something entirely out of the blue, not something developed with the intention of combatting LBD/PD. Regardless, here's hoping this just isn't an outlier or correlation. Strength to all! Timothy Hudson
http://journals.lww.com/neurotodayonline/Fulltext/2017/10190/In_the_Pipeline_Parkinson_s_Disease__Why_a_Common.1.aspx
LewyBodyDementia.ca
LewyBodyDementia.ca1 week ago
People often forget that companionship is one of the most absent elements in the lives of many. Especially the elderly. The isolated. Most who read these posts are carers, which is often the definition of isolation. Perhaps this may serve as an incentive to send to others to encourage them to visit your loved one, or yourself. Both are absolutely worthy, and every carer needs compassionate connection.
> Article by a UK hospital Dr includes "Fancy interventions and newer drugs will never be a proxy for the attentive kindness which is the strongest medicine of all. Medicine will do what it does best, treat disease, often around the edges. What it cannot do is instil patients with a sense of belonging and intrinsic worth. Treating pneumonia or mending a fractured hip is not the same as restoring dignity and meaning to a life." A simple phone call or visit can make a world of difference. Telling others is critical to making it happen.
> Strength to all. You deserve it. Timothy Hudson
https://www.theguardian.com/commentisfree/2017/oct/12/chasing-deadlines-and-happiness-we-forget-our-lonely-elderly
LewyBodyDementia.ca
LewyBodyDementia.ca1 week ago
Lewy Science: despite refinements to processes and criteria for diagnosis of Lewy Body Dementia, accuracy still needs improvement.
> New research shows that "diagnostic criteria have become more sensitive and less specific over time, without substantial change in the accuracy. Based on current data, about 20% of DLB diagnosis are incorrect. Future studies are needed to evaluate if the recently released revised consensus criteria will improve the diagnostic accuracy of DLB.
> Here's hoping that the accuracy and, to me, speed and early detection of LBD improves drastically. Strength to all! Timothy Hudson.
http://jnnp.bmj.com/content/early/2017/10/13/jnnp-2017-316844
LewyBodyDementia.ca
LewyBodyDementia.ca2 weeks ago
Free webinar on Oct 26 about changing roles from loved one to caregiver, something anyone dealing with LBD likely struggles with.
> Webinar will help you:
1. Learn how to re-orient themselves to the present as well as make sense of their changing expectations.
2. Realize how caring for a loved one changes what and whom we care about.
3. Discover how caregivers serve as gatekeepers for their loved ones in ways that transform their social networks.
4. Recognize a new value system and vocabulary that arise from the caregiving experience.
> Strength to all! Timothy Hudson
LewyBodyDementia.ca
LewyBodyDementia.ca2 weeks ago
Young-onset dementia results in significant loss of income for both carer and the person with the condition. I see this as a bit of another "duh" moment, but this article and press release give the details. Strangely, this is about Frontal-Temporal Dementia (FTD), but obviously the same elements apply to Lewy Body Dementia (LBD). What I consider misleading is the title: I think early onset of ANY dementia (including Alzheimer's) would cost twice what would be the case for later onset. But who am I to comment? Dr. Galvin's work is great, and his "checklist" for LBD is a favourite of mine.
> I know many of us are in situations where significant income has been lost. But at least for me, it was entirely worth every penny. Strength to all! Timothy Hudson
Press-release -- http://www.fau.edu/newsdesk/articles/ftd-study.php
Article -- https://www.upressonline.com/2017/10/fau-research-reveals-the-costliness-of-young-onset-dementia/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated May 7, 2017