Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
For carers, transitions are commonly unwelcome, traumatic elements of life with LBD. And all to frequent.
- For me, personally, I did end up far short of transcendence, but I definitely found meaning and purpose during and after my Lewy journey. Despite the most profound outcome being the eventual death of my loved one, this period led to personal growth, insight, increased compassion and acceptance of, at least, some things, and the belief that I could weather storms I previously would've thought impossible.
- This article might help some of us in the darkest periods provide hope that when all is done, there is some positive potential, no matter how unwelcome the source. I found it resonated with me.
- Strength to all! Timothy Hudson
https://www.theatlantic.com/family/archive/2020/09/major-life-changes-happen-clocklike-regularity/616243/?utm_source=pocket-newtab
LewyBodyDementia.ca
LewyBodyDementia.ca
Well presented, comprehensive article (with videos) on LBD. It begins with Robin Williams, but extends into many symptoms, progression, medications, etc. I'm happy to see a major news outlet going into some depth on this topic. We need every ounce of awareness possible.
- This might be a good piece to share with people who are interested, but not yet too familiar (perhaps on the periphery of a life with Lewy). Simply explained, not too upsetting, but not sugar-coated, either.
- Strength to all! Timothy Hudson
https://www.cnn.com/2020/09/01/health/lewy-body-dementia-explainer-wellness/index.html
LewyBodyDementia.ca
LewyBodyDementia.ca
I watched a pre-release version of Robin Williams' LBD documentary "Robin's Wish," and was very pleased to see it did not over-dramatize or sensationalize things. Props to film-maker Tylor Norwood, for his very sensitively portrayal of the progression of the condition.
- The film is not an "easy watch" and is unsettling in many ways, but conveys Williams' brilliance and humour, as well as the depth of despair so many living with LBD experience.
- I appreciated the opportunity to gain insights into the world of Mr. and Mrs. Williams, and the progression they experienced, with such a compelling balance of science, drama, humour, life, love, tragedy, and hope. Thanks to Lewy Body Dementia Association for the screening. The producer said it would be made broadly available in future, and there will be a shorter version released at a later date as well.
- Strength to all. Timothy Hudson
LewyBodyDementia.ca
LewyBodyDementia.ca
Caregiving can create damaging levels of stress.
- Stress cooked my brain for sure. During the long, dark years of Lewy care, along with many work challenges, unexpected health issues, relationship issues, etc: difficulties were everywhere, and stress was very high. I had difficulty reasoning, remembering, analyzing. This lasted for some years after the biggest stressors were reduced.
- It's important to reduce stress however possible, even minimally. Because it appears it can impact all those functions above, as well as possibly leading to a greater incidence of dementia.
- An interesting, short read, and hopefully a reminder to lessen stress, however you can (I know how hard this seems, and is). Strength to all! Timothy Hudson https://www.scientificamerican.com/article/ldquo-stress-hormone-rdquo-cortisol-linked-to-early-toll-on-thinking-ability/
LewyBodyDementia.ca
LewyBodyDementia.ca
What is a LBD hallucination "like", and can a person without the condition relate? Could Pareidolia provide a hint, or might both phenomena derive from a common source?
- Pareidolia is "the tendency for incorrect perception of a stimulus as an object, pattern or meaning known to the observer, such as seeing shapes in clouds, seeing faces in inanimate objects or abstract patterns, or hearing hidden messages in music."
- Certainly I discern lots of faces, animals, etc in clouds and patterned objects (ie tree back), and wonder whether some of the hallucinations and delusions of some people with LBD are caused by this tendency, but where the brain is then able to expand upon the initial trigger to form a full being or scenario from, say, a moving shadow of leaves on a curtain.
- Insights are so valuable, especially for those directly involved. Strength to all! Timothy Hudson
https://www.bbc.com/future/article/20140730-why-do-we-see-faces-in-objects
LewyBodyDementia.ca
LewyBodyDementia.ca
It is natural to be completely seized with so many elements of your loved one's condition that you ignore your own potential demise. I did. And still do, unfortunately.
A quick reminder that getting things in order needs to be a priority. The article and book suggest readying: the location of insurance policies, vehicle titles, passwords (including any master password), safe deposit box location and key, social media to be disconnected, cemetery, burial plot and funeral wishes, investment information and brokerage firm contact, tax preparer and attorney, debtor lists such as credit cards and mortgages, location of Social Security, Medicare and other insurance cards, checkbooks and bank account numbers and locations. It can be most vital to know about, and be able to find advance directives for health care, powers of attorney, and a will, on-line accounts and auto-pays to be cancelled, location of car keys, combination to exterior door locks, and a personal list of family and/or friends to be notified.
- Lots to think about. Get started now, on the most important things, even just one. You can never know what's around the next corner.
- May you not need any of this for a long, long time, but just in case.....strength to all. Timothy Hudson
https://www.apalachtimes.com/story/opinion/2020/08/20/preparing-end-life-can-avoid-tragedy-and-turmoil/5603394002/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018