Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Some dreams do come true. I am so proud that my hometown Toronto Maple Leafs made this happen. Incredible initiative to start the puck moving by Stephanie Therese's son, and so profoundly moving to see how things were put out for her husband Ron, as they make the very best of their lives living with Lewy Body Dementia.
> Thanks to the NHL and the Leafs -- looks like this World Kindness Day surprise really scored.
> Strength to all. Timothy Hudson
LewyBodyDementia.ca
NHL
"These are the best memories I'll ever have in my life." Ron Ruckstuhl was diagnosed with Lewy body dementia four years ago and had one wish: attend a Toronto Maple Leafs game. Paul Bissonnette and Auston Matthews gave Ron the experience of a lifetime. 💙 #WorldKindnessDay #ThisIsHockey
LewyBodyDementia.ca
LewyBodyDementia.ca
An interesting discussion of differences in Parkinson's Disease and the potential to lead to dementia. Despite what the piece says, the common approach has been (possibly erroneously) that the alpha-synuclein protein is the cause of both PD with dementia, and LBD. This proposes a different approach by Cleveland Clinic's Dr. Aaron Ritter, “We’re going through genetic, inflammatory, cognitive data; as well as clinical data like head traumas, medications and family history, to see if we can differentiate [pathologies in Parkinson’s and dementia]. We’re trying to get a very deep-dive into what may shape an individual’s aging process [in the brain].”
> Strength to all! Timothy Hudson
https://www.beingpatient.com/parkinsons-and-dementia/
LewyBodyDementia.ca
LewyBodyDementia.ca
A good, short video on LBD vs. Parkinson's Disease Dementia vs. Alzheimer's Disease, and what a clinician should be looking for.
> US-based neurologist Dr. James Leverenz briefly touches on differences between dementias, and what the key differences are between how these patients present and what challenges present in diagnosing them.
> One interesting item I would like to see more commonly asked, as he suggests, is to have a specialist ask a person with PD about their cognition, possibly seeing things that others don't, etc., rather than expecting a person to self-report, since these are often not concerning.
> Strength to all! Timothy Hudson
https://www.youtube.com/watch?time_continue=145&v=CtIoTchUFoc
LewyBodyDementia.ca
James Leverenz, MD: Distinct Dementia Signs and Symptoms
Dementia, while often associated commonly with a number of specific diseases, encapsulates a group of diseases that present in number of ways. Among these ar...
youtube.com
LewyBodyDementia.ca
LewyBodyDementia.ca
Person with LBD in Canada chooses medical assistance in dying. This is a profound issue, with highly charged opinions. Up here, a person needs to request this when clear of mind, and to comprehend the outcome. They then must confirm -- at the end -- that they still want assistance in dying, that they understand their choice. Very difficult with LBD, where a typical symptom is fluctuating cognition. "Capacity is ... not a flick of a switch. It can fluctuate. It can come and go," said Dr. Stefanie Green, the head of the Canadian Association of MAID Assessors and Providers (CAMAP). She ensured that the man understood and wanted to proceed in the end, during a period of clarity.
She continues, "in my opinion, the majority of providers in this country have come to the conclusion that patients with dementia can be assessed for an assisted death, that some of them may be eligible in certain circumstances, and if that is the case, they'd be willing to help them." But it is far from easy to procure, which is a good safeguard against potential abuse.
It's a thought-provoking discussion. The audio-version is more comprehensive, and can be listened to directly from the page. I hope more thought will be given to this issue, worldwide.
> Strength to all! Timothy Hudson
https://www.cbc.ca/radio/thesundayedition/the-sunday-edition-for-october-27-2019-1.5335017/b-c-man-is-one-of-the-first-canadians-with-dementia-to-die-with-medical-assistance-1.5335025
LewyBodyDementia.ca
LewyBodyDementia.ca
Don't hold your breath waiting for cure. Do all you are able right now. Help however you can. Learn all you can. You're doing a good thing.
- Some people are so overwhelmed by LBD that they may not choose to do what they can right now, and instead place their hopes in finding a cure. In my view, no significant treatment is on the horizon (and I do not believe it likely ever will be, because of the incredible complexity and overlapping elements of so many aspects of brain pathologies).
- Most carers are overwhelmed. If you are not in the thick of that role already, please try to reach out and help someone who is. Or anyone with the condition. Your efforts will be transformational, even if you can't detect those effects because of the nature of the condition. But you're oh-so needed! All you do makes a difference. Waiting for a cure does not.
- Strength to all! Timothy Hudson
https://www.economist.com/science-and-technology/2019/10/24/claims-about-a-treatment-for-alzheimers-should-be-met-with-caution
LewyBodyDementia.ca
LewyBodyDementia.ca
Excellent, long article on anaesthesia and sedatives used for surgery in people with dementia, and the elderly. I hear far too little about the known risks: i have witnessed post-op, and hospital-induced delirium, and wouldn't wish it on anyone. The piece is well worth a full read.
> Excerpt "The one thing that has been shown to be effective in preventing delirium and states of confusion after surgery is good, fundamental care of older patients, says Frederick E. Sieber, MD, professor of anesthesiology and critical care medicine at the Johns Hopkins University School of Medicine in Baltimore. "And family members are very important to this," he notes. "Make sure patients stay hydrated. Assess their medications to avoid drugs that might cause confusion. Get them up and moving as quickly as possible, and make sure they have a bed near a window, so they can see when it's night and day. Make sure they have easy access to their glasses or hearing aids. All these things have been shown without a doubt to lower the risk of delirium and optimize cognitive outcomes after surgery."
> Strength to all! Timothy Hudson
https://www.brainandlife.org/articles/general-anesthesia-may-carry-certain-risks-postoperative-hallucinations-delirium-and/?fbclid=IwAR2njBmRWmdv_0vl2BjRFMjv03MJK7THZaPB1uND9LVu6FoNtKfPhvoIr5c

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018