Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
The always awesome Helen and Jim Whitworth have another great article in their never-ending parade of fantastic, very useful posts on every aspect of Lewy Body Dementia. An incredible resource! This one explains how the newest diagnostic criteria works, in simple, clear language. Well worth checking out!
> Strength to all! Timothy Hudson
LewyBodyDementia.ca
LewyBodyDementia.ca
Medical marijuana may help some with Lewy Body Dementia (usually with low-THC and high CBD proportions). But in some areas, there are complications, even if one's legally entitled to it, as retired pharmacist, Robert Bowles, who has LBD, found in the US state of Georgia.
> Dr. Larry Tune, a geriatric neuropsychiatrist at Emory University Hospital believes it could alleviate suffering and provide an alternative to anti-psychotic drugs with serious, even dangerous, side effects for persons with dementia. Mr Bowles said “I have no desire to get high. I just want to ... be stable.”
> Towards innovative approaches, and access to medications for those in need. Strength to all! Timothy Hudson
https://www.ajc.com/news/medical-marijuana-georgia-legal-have-but-illegal-get/WW8bJbtySGDbb2ttXb4AmK/
LewyBodyDementia.ca
LewyBodyDementia.ca
Consisteny of food and drink can be critical to nutrition and hydration, especially when swallowing is an problem, so common for so many with LBD. When using thickeners, article says “taste, texture presentation, independence, and dignity play” a significant role in successful and enjoyable eating.
> There may be ways to improve the eating experience, and achieve better hydration and nutrition, for your loved one. For example, thickened fluids may take some getting used to, so starting with flavours that aren’t so odd to have in a thicker form may help the adjustment. You could start with fruit juices, rather than coffee or tea, although those can be successfully thickened as well.
> It's a good article that clearly covers the basics. Thanks to Marie-n for the original link!
> Strength to all! Timothy Hudson
- https://www.agingcare.com/articles/swallowing-disorders-tips-for-using-food-and-beverage-thickeners-208048.htm?fbclid=IwAR1qqtQKRzf2M7OGicNbko-jR0x5OJ60UWYa4kMYNTxcdlmubQlFcSR_w_s
- http://www.lewybodydementia.ca/improving-hydration-thickening-liquids-and-food-consistency-options-for-swallowing-problems/
LewyBodyDementia.ca
LewyBodyDementia.ca
Happy to see increased awareness in the broader medical community, so that not every cognitive decline in older adults is chalked up to Alzheimer's Disease. As Dr. Ruth Schneider says about LBD "You're going to be more rapidly declining. You might have more motor problems, more falls, gait changes, sleep problems, hallucinations."
> Might be of some interest to those who want to advise others of the difference in types of dementia, including Vascular, and Fronto-temporal dementias.
> Strength to all! Timothy Hudson
https://www.npr.org/sections/health-shots/2019/03/18/703944116/is-it-alzheimers-or-another-dementia-the-right-answer-matters
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: Every once in a while, a new drug emerges with great promise. Tasigna (also known as Nilotnib) came screeching into the LBD community awareness a few years ago, as a potential miracle drug. It did not live up to the hope and hype. However, it continues to be studied, and I hope it may still yield more positive outcomes that are clear and replicable.
> It was developed as a Leukemia drug, but researchers claim ""We detect the drug in the brain producing multiple effects, including improving dopamine metabolism — reducing both inflammation and toxic alpha-synuclein."
> Here's hoping improvements are not too far off. And in the meantime, as always, I advocate for "care before cure."
> Strength to all! Timothy Hudson
Two links below, to the journal, and an intepretation in more plain language.
- https://bpspubs.onlinelibrary.wiley.com/doi/full/10.1002/prp2.470
- https://www.medicalnewstoday.com/articles/324698.php
LewyBodyDementia.ca
LewyBodyDementia.ca
A long, poignant tale of a carer and his wife with LBD. Describes language aspects that many experience in a remarkably clear way. Not a light read.
> May be a worthwhile piece to share with those whom you don't want to describe your situation, but to give insights into caring and LBD (although the situation described is blessed with fewer problems than many I've known).
> Bob, caring for his wife says, "I would take being wounded over this (took 37 pieces of shrapnel in Viet Nam). Because I was a Marine, and mentally you’re prepared for that. You know it could happen. You could die. You’re trained. I’m not trained for doing this. Watching somebody that I’ve been with for 46 years … I don’t think anybody could be trained for this.”
> 8o% of all care occurs at home, and as this piece shows, "most is done at the end of life: hard work, climbing a mountain toward tragedy."
> Bob and his family do a good thing, with great insight. Strength to all! Timothy Hudson
https://chicago.suntimes.com/news/lewy-body-dementia-peg-bob-ringham-brain-disease-caregiving-health-care-2/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018