Some people prefer Facebook to websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed  to ensure a higher level of trust and legitimacy and will have a comment to allow very quick scanning.

Below, you’ll find the five most recent posts. There is endless malicious content that is singularly intended to provoke, deceive, manipulate or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added.


LewyBodyDementia.ca
LewyBodyDementia.ca22 hours ago
Be emergency prepared. Pre-notifying first-responders that someone in your household has dementia is wise. This free service is available in the US only for now, but I hope it expands. You may have another service locally if this is not available, and it is worth contacting your non-emergency number to investigate.
> There are a lot of potential downsides if first-responders do not know what they are dealing with in advance. And if you have to call 911 for an emergency, having them already know that, for example, your loved one cannot speak, or could react belligerently to strangers, or is frequently delusional could make a huge difference. One key difference is whether the police would have to get involved unnecessarily, when it is a medical problem with a potential for behaviour issues related to Lewy Body or another Dementia.
> Worth investigating for sure! Strength to all. Timothy Hudson
https://smart911.com
LewyBodyDementia.ca
LewyBodyDementia.ca3 days ago
Lewy Science: Very detailed article in The Lancet shows health-care costs and caregiver burden are higher in dementia with Lewy bodies than in Alzheimer's disease. It is probable that causative factors for the less-favourable prognosis of LBD vs AD are the increased prevalence and early emergence of neuropsychiatric symptoms in LBD, and the challenge of obtaining an accurate diagnosis.
> Covers aspects of cognitive decline, residential care, admission to hospital, caregiver burden, quality of life, life expectancy and health care costs.
> Glad to see ongoing research, and visibility in top-shelf journals like The Lancet. Strength to all! Timothy Hudson.
http://thelancet.com/journals/laneur/article/PIIS1474-4422(17)30074-1/fulltext
LewyBodyDementia.ca
LewyBodyDementia.ca3 days ago
Great “shared decision making” tips from Florida specialist in Lewy Body Dementia is nice and short, clear, and well worth considering.
> Here’s a quick reference to the technique: 1. Identify the decision to be made. 2. Discuss the medical evidence for the different options. What is the chance that a treatment will help? What are the risks? What are the costs? 3. Explore how the patient’s values and goals interact with the different options. 4. Decide.
> Research shows that this technique with doctor and patient collaborating results in improved medical knowledge and understanding, higher patient satisfaction, and greater trust. Knowing a patient’s values and goals is critical to helping make the best choices, and those may change, so let your specialist know.
> Dr.s are not gods: be proud, be heard, assert and partner with them respectfully. Usually it works.
> Strength to all! Timothy Hudson
https://academicminute.org/2017/03/melissa-armstrong-university-of-florida-what-youre-not-telling-your-doctor/
LewyBodyDementia.ca
LewyBodyDementia.ca3 days ago
Sleep disturbances are almost universal with Lewy Body Dementia. REM Sleep Behaviour Disorder is a hallmark symptom. So, how to get a good sleep? This video is geared towards Parkinson's Disease, which shares almost all of the issues with LBD, so is worth the three minutes.
> I think they go too quickly towards medication recommendations, but they work for some. My personal feeling is that regular exercise, hydration earlier in the day, rigorous bathroom regimen can counter many of the issues, especially earlier in the progression. Whatever helps is blessed!
> Strength to all, and a good night's sleep. Timothy Hudson
https://youtu.be/T24EtP0DqQM?t=16s
LewyBodyDementia.ca
Ask the MD: Sleep Disturbances and Parkinson’s Disease
Rachel Dolhun, MD is a movement disorder specialist, board-certified neurologist and vice president of medical communications at The Michael J. Fox Foundatio...
youtube.com
LewyBodyDementia.ca
LewyBodyDementia.ca5 days ago
The late comedian Robin Williams will be featured as part of a segment produced by People Magazine tonight. His death certainly brought Lewy Body Dementia into the public eye unlike anything before.
> His widow, Susan, says “Robin’s real legacy will unfold in the decades to come and really shed light on brain disease as a whole, but particularly dementia, which 47 million people worldwide are suffering right now. [Others with LBD will] know that they are not alone, that this is what Robin Williams had and they’re being heard, they’re not outcasts. So the way I see it, he truly is on that back nine going, ‘I got this,’ where he made people feel not alone before. They don’t have to feel alone now.”
> Strength to all! Timothy Hudson.
http://people.com/celebrity/robin-williams-widow-susan-opens-up-about-his-death/
LewyBodyDementia.ca
LewyBodyDementia.ca5 days ago
Why subject someone with Lewy Body Dementia to cognitive testing? The most common are the MMSE (Mini-Mental State Examination) and MoCA (Montreal Cognitive Assessment). Any can be upsetting, and it's important to make the process as smooth as possible for your loved one. While these are being administered, sometimes that gives you an opportunity to speak privately with the specialist, which I highly recommend.
> This article covers what the tests are in general terms, and why they're done.
> Personally, I question the validity of it at a certain point, since all I felt it "accomplished" was the humiliation my loved one, and difficult behaviours that resulted from the break in routine to go to the appointment, but there is some validity in many cases -- especially earlier on, and partway in. Analyze the merits in your specific case, and speak to your specialist if you have doubts or questions. Like many medications, some cease being meaningful or beneficial at a certain point.
> Strength to all! Timothy Hudson
https://www.thestar.com/life/health_wellness/2016/08/28/cognitive-tests-help-determine-degree-of-memory-loss-caregiver-sos.html

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.