Some people prefer Facebook to websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed  to ensure a higher level of trust and legitimacy and will have a comment to allow very quick scanning.

Below, you’ll find the five most recent posts. There is endless malicious content that is singularly intended to provoke, deceive, manipulate or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added.
LewyBodyDementia.ca17 hours ago
Feeding tubes: for, or against. Opinions and beliefs are family feud fuel. So, consider what's best for your loved one -- often the decision is influenced by guilt, which is never helpful. There are lots of considerations from ethical, emotional to legal and financial, and this long article covers many.
> Here's a few pertinent facts. PEG tubes initially were designed for severely disabled babies. Almost immediately, the medical community embraced the tool, then applied it to other kinds of patients: victims of stroke, trauma, cancer, Parkinson’s disease, neurodegenerative diseases and advanced dementia. “I never even thought about dementia,” 40 years ago, inventor Ponsky said recently.
> Johns Hopkins Medical Center found no evidence that feeding tubes prolonged survival of aged, demented nursing home patients. Nor do they prevent pneumonia, improve function or comfort dementia patients.
> More than two-thirds of all insertions were done when a patient was hospitalized for pneumonia or some other illness. For nursing homes, it eased the workload of hand feeding.
> If food is not artificially provided, patients typically die within two weeks, although exceptions are common. Lack of food triggers a biochemical process called ketosis, which actually blunts hunger and eases discomfort due to the release of natural morphine-like agents.
> Doctors are often predisposed to heal, rather than engage in time-consuming, difficult discussions, and many families are unprepared or unwilling to entertain these issues, especially in a crisis. “It’s easier to recommend a nonbeneficial procedure than to confront difficult end-of-life issues,” geriatrician Dr. William Plonk Jr. of the University of Virginia Health System wrote.
> Regardless of one's belief, it is absolutely imperative to consider the wishes of your loved one, as far in advance as possible.
> Strength to all! Timothy Hudson.
LewyBodyDementia.ca22 hours ago
"Difficult behaviours" is undergoing a PR remake, now being described as "responsive behaviours." For the most part, I like that, because it moves the implied blame from the person to the situation and condition. It's thought provoking although I'm not 100% behind it for Lewy Body Dementia.
> Great article covers many elements of dementia, and may provide insights even to those with a fair bit of experience.
> Stresses that it's is imperative to get a checkup if behaviours change, since hallucinations and delusions do not only stem from dementia: could be another, underlying issue like dehydration, respiratory or bladder infections, or other newly developed issue.
> Changes in eyesight and hearing can also be contributing factors. Even if not the cause, they can contribute to more difficulty coping with a changing brain.
> Remember that not all delusions are upsetting to the person with dementia. If it is a comforting thought, even if strange, then it may be better left alone.
> Some issues can be addressed by gaining an understanding of the unmet needs of the individual, things they themselves cannot now express. Sometimes the simplest things can make a huge difference: changing the environment to help the person feel safe and secure is a good start. As well, arguing and being confrontational is not a successful tactic.
LewyBodyDementia.ca3 days ago
Safinamide is another drug that improves effectiveness and evenness of Sinemet/Levodopa. For people with Parkinson's Disease, adding Safinamide to their levodopa treatment created more "on" time with diminished uncontrolled, involuntary movement. They also had better scores on a measure of motor function assessed during "on" time as well.
> The short duration of effectiveness of Sinemet/Levodopa is a problem for many, so anything to improve and level the physical functioning aspects compromised by Parkinsonism is welcome.
> I would hope that similar results would be seen with Lewy Body Dementia as well. Strength to all! Timothy Hudson
LewyBodyDementia.ca4 days ago
TV News story about Carol O'Rourke's challenging journey, as sole carer for her husband with Lewy Body Dementia. An inspirational caregiver, very wise and knowledgeable, she gives excellent tips and perspectives. Veterans like her, who continue to contribute to the community, add something truly immeasurable.
> Thanks, Carol! You were a personal inspiration to me, and continue to make a huge difference to countless others as a caregiver emeritus.
> Strength to all. Timothy Hudson.
LewyBodyDementia.ca4 days ago
Old drug provides new hope for improving effectiveness of Sinemet/Levodopa. In a new study, 71% of patients felt improved after using the drug, apomorphine. Overall results are not definitive, in my view, but optimistic. It was generally well tolerated and there were no serious side effects.
> For each improvement, a potentially brighter light at the end of the tunnel. Strength to all! Timothy Hudson.
Read more at:
LewyBodyDementia.ca6 days ago
People often wonder why someone gets Lewy Body Dementia. If we'd only done this or that. If he or she had eaten this, or not eaten that. Or lived somewhere else. LBD is an equal opportunity destroyer of lives. Activity and good diet can certainly help lower some risks, but not all.
> This man had LBD. As undeserved as any. Then got cancer. He made final decisions, was on hospice, morphine -- a route some who are reading this will witness. A poignant story of former pitcher and later PhD and teacher Bob Bertschy. Written by his long time friend, an Alzheimer's sufferer himself.
> Make decisions early. Get them notarized. Adapt as reality dictates. Live fully. Strength to all. Timothy Hudson.

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.