Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Robin Williams documentary screening and discussion January 30 in Toronto. Free tickets (must register, 2/person). As many know, Robin Williams was suffering from Lewy Body Dementia, and took his life in 2014. For those in the Toronto area, this should be a very interesting event.
> I've got my tickets, and am looking forward to the event. If you go, look for the giant wild-haired Viking -- that's me, and please say hello.
> Strength to all! Timothy Hudson
https://boxoffice.hotdocs.ca/websales/pages/info.aspx?evtinfo=82548~fff311b7-cdad-4e14-9ae4-a9905e1b9cb0
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: two compounds in coffee seem to prevent or slow development of LBD. It's the combination of caffiene, and a specific fatty acid in the coating of the coffee bean that seem to combine to slow or prevent the development of Lewy Bodies in the brains of mice.
> This isn't going to stop LBD and Parkinson's, but it might be beneficial to some. However, the researchers caution against over-caffienating in any attempt to get the benefits. And it is also not yet known how the harvesting, roasting and processing of coffee affects the proportions of the compounds, so more research is needed.
> Here's to the next phase, where hopefully they'll be able to get human testing underway, with some tangible, actionable recommendations for treatment.
> Strength to all! TImothy Hudson.
http://www.lewybodydementia.ca/compounds-in-coffee-show-promise-in-reducing-or-avoiding-development-of-lewy-bodies/
LewyBodyDementia.ca
LewyBodyDementia.ca
Joy is possible. It may manifest itself differently now. Perhaps only fleeting. But it is possible. Let it come.
> Give yourself a gift you so richly deserve. Try to let go of some guilt and sorrow. Even for a few seconds. Focus on your own breathing for a moment. Repeat. Be proud of what you do and what you've done.
> Your loved one may be here, or gone, or both. I hope you can pause frequently, appreciate anything and everything you can, no matter how small, and remind yourself of your own great powers that make such a tremendous difference to others.
> Peace and love to all! Timothy Hudson
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: Unfortunately, another promising drug in development has been found lacking. Drugmaker Axovant has decided to stop development of Nelotanserin, a drug for REM Sleep Behaviour Disorder (RBD) in patients with Lewy Body Dementia (LBD).
> Many had high hopes for this particular molecule, and it had shown great promise. I still think the focus needs to be on education, care options, and funding those two. But these things do not create profits, so they're less likely to receive funding, and definitely will not be financed in the private sector.
> Here's to other potential improvements. In the meantime, it's the carers that are making incredible, transformational improvements in so many lives.
> Strength to all! Timothy Hudson
http://www.lewybodydementia.ca/development-cancelled-for-nelotanserin-a-drug-for-lewy-body-dementias-rem-sleep-disorder-symptoms/
LewyBodyDementia.ca
LewyBodyDementia.ca
Helen and Jim Whitworth are the authors of the book I gained the most from, and are tireless advocates and educators in Lewy Body Dementia. They've just released a new book, and are making the Kindle/e-book version free until December 8, on Amazon. I am not endorsing Amazon, but this is a great free offer, if you use a Kindle.
> The book I gained the most from in my LBD caring journey is also being offered at a 40% discount, until Christmas, at the publisher's website, including US shipping for $11.97
> I do not get any financial benefit from this. But I completely support the great work the Whitworths have done for many years, and welcome their new book!
> Strength to all! TImothy Hudson
- Free Kindle e-book link -- https://www.amazon.com/s/ref=nb_sb_noss?url=search-alias%3Daps&field-keywords=Responsive+Dementia+Care%3A+Fewer+Behaviors+Fewer+Drugs
- Original book on sale link (use code GIFT40) -- https://www.springerpub.com/a-caregiver-s-guide-to-lewy-body-dementia-9781932603934.html
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science:
New research links major depression disorder with increased metabolism of α-synuclein proteins, which suggests that it may lead to higher risk of Lewy Body Dementia. It's proposed that depression can be something that may help predict the later development of LBD, as well as contributing to its development. Depression definitely does not occur in all persons who later develop LBD in my experience, but there could be more than a correlation.
> Nowhere near a cure, but might someday lead to fewer cases of LBD, if α-syn proliferation and misfolding is able to be controlled before LBD develops through treatment of depression.
> Strength to all! Timothy Hudson
http://www.lewybodydementia.ca/depression-may-lead-to-higher-risk-of-lewy-body-dementia/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018