Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: There's a lot of interest in potential environmental contributors to LBD in addition to genetic factors. This article shows a possible connection between Phthalates (comonly added to plastics to increase their flexibility, transparency, durability, and longevity.etc). The researchers refer to these as "pesticide-like."
- There has been a protracted, ongoing debate between industry groups and those who believe many chemicals and unnatural elements contribute to many ailments. This is a pitched battle, with much potentially at stake for producers, as well as people who cannot avoid exposure.
- Not a light read, although short, the article reminded me to continue to try to limit my exposure to potentially damaging substances. I've been a vegetarian for years now, eat as well as possible, commute by bicycle, drink lots of water, etc., but just living in North America's 3rd largest city holds significant risks from pollution and other contaminants.
- If these studies can raise awareness of LBD, as well as potential disease-causing toxins we commonly encounter, we'll be the better for it.
- Strength to all! Timothy Hudson
https://jnnp.bmj.com/content/early/2020/07/06/jnnp-2020-322815
LewyBodyDementia.ca
LewyBodyDementia.ca
Wherever you are in your life's journey, considering the future is always prudent. Nothing may be as you expect, but considering what could come, and being able to adapt to that will make things easier, come what may. This is an interesting, thorough article on "aging in place," a common buzz-phrase these days. The five key points are:
1. Start Early (consider, research, think through)
2. Go slow (don't try to do everything at once)
3. Consider finances (especially comparative costs elsewhere, which are often glossed over)
4. Choose your forever home (this might be right where you are already)
5. Create and alternative income stream (this might be surprisingly possible)
- The support of a community really is key, in my view, and what that actually is varies greatly. Here's hoping you can find and nurture your community, to help you sustain whatever may come. Strength to all! Timothy Hudson
https://getpocket.com/explore/item/moves-to-make-now-to-age-in-place?utm_source=pocket-newtab
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Medication: A common scenario with Parkinson's Disease is that the effects of medication for the rigidity and tremor often wears off before the next dose is due. And with the significant downsides many with LBD experience with with Sinemet/Levodopa, adding more doses is not always viable. This new drug should be available in the autumn, and it will be interesting to see whether Kynmobi (apomorphine, which simulates Dopamine, which helps with mobility) will be prescribed, or be useful for those with LBD.
- Hoping for improvements and breakthroughs that will be truly meaningful!
- Strength to all. Timothy Hudson
https://www.michaeljfox.org/news/supported-early-mjff-investments-new-parkinsons-therapy-receives-fda-approval
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: Small but interesting study indicates the presence of visual hallucinations in early Mild Cognitive Impairment phase correlates with a faster decline in persons with LBD and Alzheimer's Disease.
- The study also indicates a correlation between lower baseline functionality in MCI phase, but to me, that indicates the MCI was diagnosed at a later stage, rather than a causative element. But the study (as all do) suggests further study is required, and that the sample size was small.
- Interesting regardless. In my personal, anecdotal experience, it has seemed that more drastic early symptoms often correlate with faster progression.
- Towards the best care possible! Strength to all. Timothy Hudson
https://www.cambridge.org/core/journals/psychological-medicine/article/prospective-predictors-of-decline-v-stability-in-mild-cognitive-impairment-with-lewy-bodies-or-alzheimers-disease/3F015EB94DF11AB4F8E8D94CC8329CEB
LewyBodyDementia.ca
LewyBodyDementia.ca
Here's a free, daily, live stream you can use for seated, joyful movement. Activity transforms our days. Especially with COVID19 isolation, most cannot get out to do what they'd do otherwise. The Dancing with Parkinson's Canada's program was transformative for my LO, and we attended weekly for years. It was likely the single-most impactful hour we spent weekly.
- It's free to sign up, watch, and participate. It's a great community, and uses Zoom to share the video. There are interactive portions which are optional. And it can all be done seated, and even a person with limited ability to follow instructions can still mirror the dance leader onscreen.
- I appreciate all they do, and know what a difference they make. Try it out! Strength to all. Timothy Hudson
https://www.dancingwithparkinsons.com
LewyBodyDementia.ca
LewyBodyDementia.ca
Everyone will have to do their best to make sure the future of dementia care is not lost in a paradigm shift to focus developments only on COVID-19.
- I personally know of many tragic and upsetting scenarios of carers unable to visit or contact their loved ones, as well as staff that are so utterly overworked. And with everyone at risk right now, it's understandable that we have re-prioritized. But the crises that all dementias wreak is no less significant than ever. Here's hoping that it'll be recognized as a repairable tragedy that can be improved -- for the benefit of many millions worldwide, as soon as the current COVID nightmare is less catastrophic. Not a moment later.
- We will all need to continue doing our very best.
- Strength to all, especially in this unprecedentedly punishing period for those living with Lewy.
Timothy Hudson
https://www.economist.com/international/2020/04/26/for-people-with-dementia-the-coronavirus-pandemic-is-a-nightmare?

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018