Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.
Lewy Science: Misfolded α-synuclein proteins in the brain are what is believed to be a root cause of both LBD and Parkinson's Disease. @RutgursU researchers are testing a new drug-like compound, named Synucleozid, that reduces α-synuclein levels and "protects cells against the toxicity of the misfolded form of the protein, suggesting that it has the potential to prevent disease progression."
- This has significant potential, it seems. But as with all press releases, one must be reminded that a widely available treatment based on this is likely still VERY far away. But it does sound like progress! Here's to more of that.
- And in the meantime, strength to all! Timothy
30 minute TV interview with nurse and awesome LBD advocate Stephanie Therese. Among many topics, she tells of her experiences with early onset, the emotional toll of living with Lewy, rural life with dementia, educating, advocacy for assistance, financial challenges, and dealing with difficult comments such as “but he looks so good!” get the tools to live a good life with dementia. You can get tickets for her foundation's Dandelions of Hope hosting of Teepa Snow on April 17 for a live Canadian session close to Bangor Maine and Saint John, New Brunswick.
- Proud to have Stephanie as a friend!
Strength to all. Timothy Hudson
Southwest Magazine: Stephanie Ruckstuhl discusses Lewy Body Dementia
Southwest Magazine: Saint Andrews resident Stephanie Ruckstuhl is a nursing professor at the local community college by day. She is also the primary caretake...
Canadian law on Medical Assistance in Dying (MAID) is being reviewed. A spouse of a person with LBD who wants the option of MAID for the future, but the law doesn't allow it gives her thoughts on the issue. Currently, her husband would not have the option, despite it being desired, and despite the suffering they both wish to avoid. As she says, “People need to put themselves in our shoes and see just what it’s like, then maybe they would change their mind.”
- An important issue. I hope all Canadians weigh in on it. I have. Strength to all! Timothy Hudson
Interesting to see these three very common symptoms of dementia listed together. For some reason, they are rarely specifically identified in articles -- ones which I'm sure many of you will recognize immediately:
1. Aphasia: inability to speak and/or understand language, including struggling to find words in conversation, and I'd include created words, non-words
2. Agnosia: inability to recognize people and objects we used to know well, such as someone you know, but you lack the ability to recognize that person
3. Apraxia: loss of motor memory, typically affecting everyday functioning like getting dressed, cooking or driving, and I would say, using the toilet, teeth brushing, using utensils.
There certainly needs to be increased awareness in so many areas! Here's to that developing. Strength to all! Timothy Hudson
This is a great article on a very important topic: swallowing issues, aspiration, and choking. It's very important to be aware of these aspects, and the symptoms, to avoid them turning into a life-threatening crisis. It's got descriptions of the mechanism of swallowing and the common areas of concern. Well worth a few minutes to read through.
- Thanks to Kelley Eves for the original post!
- Strength to all. Timothy Hudson
Great, quick video on LBD, gives a brief overview of the condition and mentions a critical element: the need to avoid certain medications that can be dangerous or fatal.
The Lewy Body Society in the UK is doing great things, and is a great resource!
Strength to all. Timothy

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018