Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.
Lewy Science: Lewy Bodies have been believed to be formed from an aggregation of mis-folded α-synuclein proteins, which form clumps and disrupt neural transmission in the brain. New research indicates that earlier analysis may have used methods that damaged the samples, and missed key elements, which they say is a clump filled more with lipids, organelles, mitochondria and other "garbage" that interacts with the α-synuclein somehow to form the Lewy bodies.
> Huh? As with almost all research findings, yet more research is claimed to be required. An interesting (not light) read for anyone with a scientific bent. With the disappointingly slow progress to understand LBD pathology, I welcome new theories. Because an idea is established doesn't necessarily mean they're correct.
> In the meantime (and for a very long while to come), increased education, awareness and adaptation is the key. Here's to that! Thanks to Paula Rice Biever for the link! Strength to all, Timothy Hudson
In a bizarre contradictory finding, new research indicates a "clear relationship" in those who have their appendix removed and incidence of Parkinson's Disease (caused by Lewy Bodies). This seems to underline how much research is going on, but how far from clear understanding there is.
> Right now, focusing on care and living the best possible lives is the top priority. Strength to all! Timothy Hudson
Here's the contradictory articles
1. appendix removal increases PD likelihood:
2. appendix removal decreases PD likelihood
Hallucinations in Lewy Body Dementia are often benign, of children or animals, but they can also be very disturbing. Reducing their likelihood or intensity is worth striving for. It's important to know that other issues can cause drastic increases in hallucinations, such as infections, dehydration, delirium, medications, fever, electrolyte imbalances and more. This thorough article covers many other elements which are worth considering, such as how hallucinations can be in any or all of the five senses, which makes them that much more real to the person experiencing them.
> Glad to see Mike Belleville quoted here, who is living with LBD. Strength to all! Timothy Hudson
Lewy Science: Medication options to treat psychosis in LBD and Parkinson's has been very limited. A new study, while says “there were no significant differences between pimavanserin and quetiapine (Seroquel) in time to discontinuation, mortality, or improvement in psychosis." However, the article goes on to say" patients were more likely to discontinue quetiapine because of side effects and pimavanserin due to inefficacy." To me that last sentence is very important -- I think if it were me, I'd try the one that may be less effective but has fewer side effects first, and try the one with more side effects if the first didn't work.
> Here's hoping effective treatments come soon. In the meantime, insightful and informed care is gold. Strength to all! Timothy Hudson
Lewy Science: A heart test distinguishes Lewy Body Dementia from other neurodegenerative diseases. This appears to not be commonly known nor applied, despite the research being almost 10 years old. The test is frequently used in Japan, but since it is not covered by most health insurers in the US, it's not regularly applied there. It may be something you can inquire with your specialist if looking to solidify a diagnosis. Thanks to J-R for the original link!
> Strength to all! Timothy Hudson
Theories are changing. It's now much more commonly recognized that the majority of dementia cases are actually two or more types. Here, a person with classic Alzheimer's Disease (AD) symptoms had Lewy Bodies present when autopsied. Not just the plaques and tangles of AD. Are researchers looking at the wrong target in drug development, and missing the actual underlying cause of all dementias?
> There may be something in the brain that sets off a cascade of multiple pathologies, and blocking that factor could stop the process and prevent dementia. One factor is diminished blood flow to the brain. Data from nine recent studies found a 15% decline in new AD cases over the past 25 years. Researcher says "the only reasonable candidate is improved vascular health." The most important factor is believed to be the decline in smoking, but people in rich countries also are more likely to better control high blood pressure and cholesterol levels.
> This is just one idea of shifting thinking on disease development, and the article is well worth a read. Strength to all! Timothy Hudson

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018