Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Great, quick video on LBD, gives a brief overview of the condition and mentions a critical element: the need to avoid certain medications that can be dangerous or fatal.
The Lewy Body Society in the UK is doing great things, and is a great resource!
Strength to all. Timothy
LewyBodyDementia.ca
LewyBodyDementia.ca
LewyBodyDementia.ca
Canadians: Provide your opinions online on potential revisions to the Medical Assistance in Dying (MAID) legislation review. This is critically important, a complex issue, and the deadline is January 27, 2020.
Some of the current changes being considered relate to whether a person could have binding advance directives. As it is currently, for example, one must clearly answer a rigorous series of questions at the very end, something a person who is profoundly impacted by many conditions could not perform, and could thus be denied access.
This has very deep implications, and all perspectives need to be heard. And if you are not in Canada, reflect upon whether this issue should be considered in your country.
Strength to all! Timothy Hudson
https://www.justice.gc.ca/eng/cons/ad-am/index.html
LewyBodyDementia.ca
LewyBodyDementia.ca
A probiotic supplement which boosts digestive health may slow – and even reverse – the build-up of a protein associated with Parkinson’s. So far, only in worms..... But I try to keep my "gut biome" in good shape with probiotics, and hope this might make a difference.
Alpha-synuclein proteins misfold and turn into Lewy Bodies, and there's a theory that they start in the gut, and travel from there to the brain. So if they can be reduced lower down, perhaps things can be improved or avoided. I think this is overly simplified and overly-optimistic, but my LO had probiotic yogurt every day, and her journey was better than many.
- Towards any improvement! Strength to all. Timothy Hudson
https://www.parkinsons.org.uk/news/gut-bacteria-could-guard-against-parkinsons
https://www.cell.com/cell-reports/fulltext/S2211-1247(19)31743-7
LewyBodyDementia.ca
LewyBodyDementia.ca
"Freezing" and falling are common with Lewy Body Dementia's Parkinson's Disease (PD) symptoms. Although the spinal stimulation treatment used here is not yet available, it's among the best I've seen, and seems like it could be a big boost for the future. A key element is that it appears that the "retraining" to avoid falls this device enables, has to do with the signals going TO the brain, rather than FROM the brain.
- This cutting-edge treatment was developed by Canadian researchers who say it as going ‘beyond their wildest dreams’. I have pretty wild dreams, I hope it can live up to them (and SOON!)
- Strength to all. Timothy Hudson
https://www.bbc.com/news/health-47803496
LewyBodyDementia.ca
LewyBodyDementia.ca
Making the most of visits can be challenging. This page has a series of videos with the always-awesome Teepa Snow on how to engage. They're all reasonably short, and are sections of a full, long presentation, so you can watch bite-sized clips whenever you can steal a few moments.
- They're not in proper order, but are numbered so you can suss it out. Hope they're of interest, and benefit!
- Strength to all. Timothy Hudson
https://www.youtube.com/user/alzeducation/search?query=Making+Visits
LewyBodyDementia.ca
LewyBodyDementia.ca
A beautiful, powerful and poignant photographic portrait of a couple struggling through the latter stages of Parkinson's Dementia (which is indistinguishable from LBD at this point).
“You keep loving each other," says Else Mathiassen, who cared for her husband Poul 'til his death in 2018. "No matter what, no matter sickness. He was my husband. We’ve been together all life, we were supposed to be together until we couldn’t anymore.”
- Not an easy viewing, but one I found inspiring, as well. Thanks to Brain Support Network for posting earlier.
- Strength to all! Timothy Hudson
https://www.statnews.com/2019/12/09/window-into-dementia-at-the-end-of-a-life/?fbclid=IwAR3hqkiZavuuIGbXJm1uiQOtljviet88Cf9dxTDZ_OmPVJnZz2pZutK6qKU

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018