Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Medication: A common scenario with Parkinson's Disease is that the effects of medication for the rigidity and tremor often wears off before the next dose is due. And with the significant downsides many with LBD experience with with Sinemet/Levodopa, adding more doses is not always viable. This new drug should be available in the autumn, and it will be interesting to see whether Kynmobi (apomorphine, which simulates Dopamine, which helps with mobility) will be prescribed, or be useful for those with LBD.
- Hoping for improvements and breakthroughs that will be truly meaningful!
- Strength to all. Timothy Hudson
https://www.michaeljfox.org/news/supported-early-mjff-investments-new-parkinsons-therapy-receives-fda-approval
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: Small but interesting study indicates the presence of visual hallucinations in early Mild Cognitive Impairment phase correlates with a faster decline in persons with LBD and Alzheimer's Disease.
- The study also indicates a correlation between lower baseline functionality in MCI phase, but to me, that indicates the MCI was diagnosed at a later stage, rather than a causative element. But the study (as all do) suggests further study is required, and that the sample size was small.
- Interesting regardless. In my personal, anecdotal experience, it has seemed that more drastic early symptoms often correlate with faster progression.
- Towards the best care possible! Strength to all. Timothy Hudson
https://www.cambridge.org/core/journals/psychological-medicine/article/prospective-predictors-of-decline-v-stability-in-mild-cognitive-impairment-with-lewy-bodies-or-alzheimers-disease/3F015EB94DF11AB4F8E8D94CC8329CEB
LewyBodyDementia.ca
LewyBodyDementia.ca
Here's a free, daily, live stream you can use for seated, joyful movement. Activity transforms our days. Especially with COVID19 isolation, most cannot get out to do what they'd do otherwise. The Dancing with Parkinson's Canada's program was transformative for my LO, and we attended weekly for years. It was likely the single-most impactful hour we spent weekly.
- It's free to sign up, watch, and participate. It's a great community, and uses Zoom to share the video. There are interactive portions which are optional. And it can all be done seated, and even a person with limited ability to follow instructions can still mirror the dance leader onscreen.
- I appreciate all they do, and know what a difference they make. Try it out! Strength to all. Timothy Hudson
https://www.dancingwithparkinsons.com
LewyBodyDementia.ca
LewyBodyDementia.ca
Everyone will have to do their best to make sure the future of dementia care is not lost in a paradigm shift to focus developments only on COVID-19.
- I personally know of many tragic and upsetting scenarios of carers unable to visit or contact their loved ones, as well as staff that are so utterly overworked. And with everyone at risk right now, it's understandable that we have re-prioritized. But the crises that all dementias wreak is no less significant than ever. Here's hoping that it'll be recognized as a repairable tragedy that can be improved -- for the benefit of many millions worldwide, as soon as the current COVID nightmare is less catastrophic. Not a moment later.
- We will all need to continue doing our very best.
- Strength to all, especially in this unprecedentedly punishing period for those living with Lewy.
Timothy Hudson
https://www.economist.com/international/2020/04/26/for-people-with-dementia-the-coronavirus-pandemic-is-a-nightmare?
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: Can antibiotics worsen cognition?
This is something I have not seen investigated previously, that "antimicrobial drugs" can impact cognition, particularly in the elderly and people with kidney problems. I have never experienced this myself, directly, and always found that delirium and cognitive issues improved once the infection started to clear with the use of antibiotics. But that was typically for an acute issue like a urinary tract infection, or pneumonia, and I would not risk that worsening even if a clear connection between antibiotics and cognitive worsening was established.
There's little clear data on this at the moment, but might be something to keep track of if a person gets antibiotics without an acute issue. Anyone ever have any issues like this?
> Strength to all! Timothy Hudson
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6007723/?fbclid=IwAR1JyimlpK4AqN7Z9nML0YmvmivcgPC9Hf1cYeZA4ib-TcSx6dmQBD5QJ-g
LewyBodyDementia.ca
LewyBodyDementia.ca
Joy Milne can "smell" Parkinson's Disease. I've posted about her remarkable ability before, but this story is a fabulous overview.
> As her "superpower" has become more known, researchers all over the world have begun working with her and have discovered that she can identify several kinds of illnesses — tuberculosis, Alzheimer's disease, cancer and diabetes. Wow!
- Of particular interest was that her husband, who she first noticed the smell on, many years before symptoms. Sounds like REM sleep disorder to me, a VERY common precursor to LBD. I wonder if she'd be able to diagnose that as well, long before typical symptoms appear.
- Towards more hope in unexpected places. Especially now. Strength and health to all! Timothy Hudson
https://www.npr.org/sections/health-shots/2020/03/23/820274501/her-incredible-sense-of-smell-is-helping-scientists-find-new-ways-to-diagnose-di

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018