Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Plan now to donate your brain. Brain research needs unaffected brains, as well as those with neurological disorders like Lewy Body Dementia, so if you're arranging to have a person with LBD's brain donated, please see about having yours done.
> This is a long article, but an interesting read. It has details of the process that may be unsettling to some. One thing I did not know, is that the process does not render the body unfit for an open casket funeral, if that's desired (it's removed from the back of the skull).
> I appreciate the work the Brain Support Network is doing and you can look to them for further information.
> Strength to all! Timothy Hudson
https://www.smithsonianmag.com/science-nature/inside-brain-bank-where-humans-precious-organ-dissected-studied-180972945/
LewyBodyDementia.ca
LewyBodyDementia.ca
Realistic dolls, stuffed animals, and robotic dogs hold distinct potential for some people with dementia. Lewy Body Dementia has unique challenges, but familiarity and purpose are often hard to maintain, and faux-babies and pets can sometimes make a big difference. In many circumstances, this seems entirely appropriate to try. Definitely won't work for all, but might just be worth a try. Any comfort to a person is worthwhile in my view. And as the owner of a robotic dog says in the article, “It has made people happy. I don’t know how it works. It just works.”
> Strength to all! Timothy Hudson
https://www.columbian.com/news/2019/aug/12/vancouver-group-offers-dolls-stuffed-animals-to-help-people-with-dementia/
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science:
Misfolded alpha-synuclein protein strands are thought to be a cause of what becomes Lewy Bodies in the brain. But at least one purpose of these proteins seems to include repairing DNA. “This is the first time that anyone has discovered one of α-synuclein’s functions is DNA repair,” explained Oregon Health and Science University's researcher Vivek Unni. The study suggests that aggregation of α-synuclein prevents it from accessing damaged DNA, inhibiting repair and ultimately leading to programmed cell death. According to Unni, “it may be the loss of that function that’s killing that cell. That function is critical for cell survival, and it appears to be a function that’s lost in Parkinson’s disease.”
> Strength to all. Timothy Hudson
https://www.neuro-central.com/2019/07/30/study-reveals-potential-role-%ce%b1-synuclein-dna-repair-new-target-parkinsons/?utm_source=Adestra&utm_medium=email&utm_term=&utm_content=
LewyBodyDementia.ca
LewyBodyDementia.ca
Normal Pressure Hydrocephalus (NPH) can present very similar symptoms to LBD: memory impairment, a shuffling gait, difficulty standing and walking. It is worth having this possibility investigated, even if it's unlikely. My cousin had it, and was successfully treated in Australia, albeit with some complications.
> Doctor says his NPH clinic is overwhelmed with requests, and that they're triaging many people since they can't properly assess and treat so many. But he also cautions to not get false hope, and also that even if it is NPH, many people are too frail to undergo some of the analysis, let alone treatment.
> There are four video clips that should play in sequence, if you have the time. Total about 15 minutes.
> Strength to all! Timothy Hudson
https://www.ctvnews.ca/health/new-clinic-treats-patients-with-reversible-condition-often-mistaken-for-dementia-1.4525349?cid=sm%3Atrueanthem%3Actvbarrie%3Apost&utm_campaign=trueAnthem%3A+Trending+Content&utm_content=5d3e61c6ba8d0400013cac7a&utm_medium=trueAnthem&utm_source=facebook&fbclid=IwAR2ziaWQ5jfjohiAYlY-lfn1PyQ6KUFfvGXQH5mpSzV1GOci8WV74ZehMXA
LewyBodyDementia.ca
LewyBodyDementia.ca
Improve UTI treatment.
One third of Urinary Tract Infections (UTI) are now resistant to the commonly used antibiotics for treatment. And UTI's are all-too common with LBD.
> If a UTI is suspected, ask that the urine sample is cultured, and the results assessed to see which antibiotic will actually work for the particular strain, so you don’t end up taking one or more ineffective ones first, while the condition worsens. Generally, doctors do not order a urine culture before prescribing an antibiotic. So it's worth asking to get the fastest, best results for a very serious problem.
> I kept a couple sample jars, and when I suspected one, I'd get the specimen, and get it to our doctor, who'd have the analysis done, which greatly sped up diagnosis (if present) and treatment.
> UTI's are not limited only to the frail. The article says that UTIs “are the single biggest risk to healthy people from drug-resistant germs.” And although home remedies would be nice, “science does not support the efficacy of some popular remedies like cranberry juice or cranberry pills.” Especially since they’re usually full of sugars, which feed the bacteria causing infection.
> Thanks to Brain Support Network for the original link. Strength to all! Timothy Hudson
https://www.nytimes.com/2019/07/13/health/urinary-infections-drug-resistant.html?fbclid=IwAR1YvZx4QVW0Dg5jy4H55Y38xnLq8BCHVPnedy2QF4gR401lE13W5Qqtxxo
LewyBodyDementia.ca
LewyBodyDementia.ca
Last week there was a Lewy Body Dementia conference in Las Vegas, USA. It had both a scientific stream, and a track for those with the condition and carers. I'm delighted to see that people living with Lewy are being recognized, since I personally think that's a much more important, immediate benefit than the science is -- certainly considering mostly dismal drug development results.
> The article focuses on a session dealing with using improvisational comedy routines to help interact. I used something similar myself, and found it very effective. If you're interested in more on it, I can put a link in the comments.
> Strength to all! Timothy Hudson
https://www.reviewjournal.com/life/health/caregivers-learn-new-tactics-at-lewy-body-dementia-conference-1698608/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018