Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca8 hours ago
Free Webinar on Parkinson's "off episodes" Thursday, October 18, 12 noon, Eastern Time, will discuss how to manage and treat these fluctuations, and the therapies in development. Session is open to anyone connected to PD, including carers, but it is specifically designed for primary care physicians, family practice physicians, general medicine physicians, geriatricians, general neurologists, movement disorder specialists and any other health care practitioners who manage patients with Parkinson's disease.
> Allows you to ask questions as well. Should be an interesting discussion.
> Strength to all! Timothy Hudson.
https://www.michaeljfox.org/understanding-parkinsons/webinar-registration.php?id=49&e=1839793&k=710F35AA99CCE90B92067893F2ADC3B4&et_cid=1164825&et_rid=225197594&et_lid=Register+Nowem_cid=
LewyBodyDementia.ca
LewyBodyDementia.ca1 week ago
Alternative approaches to treatment of mental illnesses are being tested. Article focuses on the auto-immune elements of conditions, and a change in thinking in many areas as underlying aspects are better understood. It includes some very interesting examples, from a bone-marrow transplant to treat leukemia that also cured schizophrenia, to probiotics that lessen mania hospitalizations by 75%, to the use of old antibiotics to, seemingly, reduce brain inflammation.
> A very interesting read. And for me, at least, I felt there were multiple benefits from probiotic, active-bacterial-culture yogurt for my LO with LBD. You may find some thoughtful elements here as well.
> Strength to all! Timothy Hudson
https://www.nytimes.com/2018/09/29/opinion/sunday/schizophrenia-psychiatric-disorders-immune-system.html
LewyBodyDementia.ca
LewyBodyDementia.ca2 weeks ago
The hallucinations and delusions many people with Lewy Body Dementia may best be managed by considering each episode or theme. This article gives some good, actionable suggestions that may help you be more successful in working through them with your loved one. Thankfully, everyone does not experience them profoundly, nor constantly, but when they are in full effect, any guidance, tips and tricks are so welcome.
> What do you do that makes a difference?
> Strength to all! Timothy Hudson
https://www.verywellhealth.com/responding-to-hallucinations-in-lewy-body-dementia-97709
LewyBodyDementia.ca
LewyBodyDementia.ca shared CBS Sunday Morning's video.2 weeks ago
Lewy Body Dementia does not spare the famous (Robin Williams) nor the wealthy, as CNN mogul Ted Turner recently revealed his diagnosis, although he grossly understates its coming severity and impact. His interview shows what I consider to be many of the early symptoms, including neutral affect, limited facial expressiveness, rigidity, quiet voice, and difficulty with word finding and memory, as he exhibited when he described his condition, saying "But, I also have got, let's - the one that's - I can't remember the name of it. Dementia. I can't remember what my disease is."
> This is another tragedy. But I also hope he can put his considerable influence and finances into improving care, education and awareness of LBD and all dementias. If he chose, he has the resources, power and influence to transform perceptions, and go a long way to relieving symptoms, and -- perhaps -- a cure. That would be a legacy that'd be truly monumental.
> Strength to all, and especially to Mr. Turner and family at this time. Timothy Hudson
> multiple links below, if you are interested in coverage and reaction
- Reaction by person with LBD: https://www.al.com/news/index.ssf/2018/09/somebody_needs_to_tell_ted_tur.html
- NPR https://www.npr.org/2018/10/01/653108552/ted-turner-opens-up-about-having-lewy-body-dementia
- USA Today — https://www.al.com/news/index.ssf/2018/09/somebody_needs_to_tell_ted_tur.html
LewyBodyDementia.ca
CBS Sunday Morning
EXCLUSIVE: CNN founder Ted Turner says he is battling Lewy body dementia, a progressive brain disorder which affects memory and other cognitive functions. He opened up about his health struggle in an interview with Ted Koppel on #CBSSunday. https://cbsn.ws/2NbE01U
721 124    View on Facebook
LewyBodyDementia.ca
LewyBodyDementia.ca2 weeks ago
Antipsychotic drug Nuplazid, the only FDA-approved treatment for hallucinations and delusions in Parkinson's disease has passed a secondary review. The FDA ruled that the potential benefits outweighed the risks, citing a "lack of safe alternatives and the pleas from family members who claimed the drug was already helping or could help their loved ones."
> Nuplazid initially received an expedited initial FDA approval because it had been designated a "breakthrough therapy," demonstrating "substantial improvement" compared to treatments already on the market. While many said Nuplazid helped tame hallucinations with few apparent side effects, others expressed concern that the drug led to death. The secondary review concluded that any increased mortality was among elderly patients with advanced-stage Parkinson's disease who suffered from numerous medical conditions, who often take other medications that can increase the risk of death, rather than Nuplazid being the primary cause.
> The FDA criticized prescribing approaches, with it being used improperly in conjunction with other antipsychotics, and with drugs that can induce heart issues. Combinations need to be carefully monitored.
> Strength to all! Timothy Hudson
https://www.wnem.com/fda-concludes-examination-of-parkinson-s-drug/article_ccb3e7b6-8983-51b7-8f43-767987a06960.html?utm_source=facebook&utm_medium=meredithHub
45 4    View on Facebook
LewyBodyDementia.ca
LewyBodyDementia.ca3 weeks ago
I've always been very concerned of the effects of surgery and anaesthetics on people with dementia. Although not irrefutable, the risks are many, although sometimes these procedures cannot be avoided. Short article warns of the risks of Delirium, which is so common in hospitals and persons with dementia, particularly. My own experiences with it were among the very worst of the LBD journey.
> Excerpt, "Surgical procedures generally lead to inflammation and immunological responses that can negatively affect the brain. During surgery, blood flow to the brain may be impaired because of changing fluid levels or blood loss. Some surgical procedures might directly increase the risks of small strokes. Some anaesthetic drugs have potential to impair memory and cognitive function. Following surgery, pain and medications used to treat pain and other operative complications could impair cognition."
> Well worth a read, and thanks to Dr. Nathan Herrmann for his ongoing work. Strength to all! Timothy Hudson
http://health.sunnybrook.ca/brain/surgery-and-dementia/

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018