Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Last week there was a Lewy Body Dementia conference in Las Vegas, USA. It had both a scientific stream, and a track for those with the condition and carers. I'm delighted to see that people living with Lewy are being recognized, since I personally think that's a much more important, immediate benefit than the science is -- certainly considering mostly dismal drug development results.
> The article focuses on a session dealing with using improvisational comedy routines to help interact. I used something similar myself, and found it very effective. If you're interested in more on it, I can put a link in the comments.
> Strength to all! Timothy Hudson
https://www.reviewjournal.com/life/health/caregivers-learn-new-tactics-at-lewy-body-dementia-conference-1698608/
LewyBodyDementia.ca
LewyBodyDementia.ca
I have high expectations for the benefits of technology and caring right now, and even more for the future. This house is set up so that many elements of activity: bed, halls, doors, bathroom, etc., are automatically monitored, and if things are out of the ordinary, people will be notified to act. For example, the tech detected that the resident, who has LBD had "changes to her temperature and bathroom habits that suggested she had developed a urinary tract infection (UTI). This was quickly treated with antibiotics, which meant she avoided a hospital stay"
> Here's hoping this might give you some ideas, and that something similar will be available ASAP.
> Strength to all! Timothy Hudson
https://www.dailymail.co.uk/health/article-7176723/The-hi-tech-house-hope-revolution-dementia-patients.html
LewyBodyDementia.ca
LewyBodyDementia.ca
This is a great primer article on Lewy Body Dementia, with useful links. May be very helpful for someone who has not yet been "in the trenches" very long yet.
> Particularly interesting is the claim that about 50% of people eventually diagnosed with LBD are first diagnosed with Alzheimer’s or a psychiatric diagnosis like depression.
> Strength to all! Timothy Hudson
https://theconversation.com/knowing-the-signs-of-lewy-body-dementia-may-help-speed-diagnosis-83763
LewyBodyDementia.ca
LewyBodyDementia.ca
Happy to see the indefatigable Robert Bowles featured in this article, continuing to raise awareness about Lewy Body Dementia.
> I also like his doctor's quote in the article, who isn't just myopically searching for a cure, but says “We are focusing on improving general brain health whatever the cause of the disease. It’s about exercise. It’s about reducing stress. It’s about having a purpose in life. It’s about social and cognitive interactions." Amen to all that!
> Towards greater awareness and education leading to better lives for everyone living with LBD. Because we all are.
> Strength to all! Timothy Hudson
https://www.staradvertiser.com/2019/06/11/live-well/lewy-body-dementia-is-serious-but-little-known/
LewyBodyDementia.ca
LewyBodyDementia.ca
Day programs for people with LBD can be transformative. They were for us! Sunnybrook Health Sciences Centre's Dr Nathan Herrmann, whom I know well, and treated my LO, has a great article on the benefits, including "socialization, mental and physical stimulation, encouraging a sense of mastery, improvement in mood and potentially problematic behaviours like agitation and apathy. Participants sleep and appetite will often improve as a result of increased physical and mental activities.
> I completely agree with him, that "potential benefits of day programs are overwhelmingly worth the effort to ensure their attendance." Especially since they can allow a carer a very much needed respite.
> I hope you can benefit from one of these. Strength to all! TImothy Hudson
http://health.sunnybrook.ca/memory-doctor/why-attend-dementia-day-program-pros/
LewyBodyDementia.ca
LewyBodyDementia.ca
The powers of music and movement are transformative. I recommend this as among the very best therapies, since it can help in so many ways. I experienced this first-hand, in a weekly Dancing with Parkinson's Canada session for several years. Every single session brought improved mobility, and more importantly, improved mood. My LO remained seated always, and there were a vast range of abilities, from seemingly unaffected, to profoundly impacted people, including the woman in the wheelchair who appears briefly late in the documentary, and with whom I engaged regularly, who also suffered from LBD.
> You can follow-along with in-class videos for free. DVD's are also available, and classes are also staged in the US. I hope you'll be able to experience it yourself. The facilitators still rank among the very best people I ever interacted with during the course of the condition.
> Strength to all! TImothy Hudson
> short documentary -- https://www.youtube.com/watch?v=5utV1ERgbs8
> free videos of classes you can follow -- http://capture.nbs-enb.ca/dwp/page/Home.aspx
LewyBodyDementia.ca
How Dancing Helps Parkinson's patients
Parkinson's disease can cause stiffness and loss of motor control. But new research suggests that dancing can help. »»» Subscribe to The National to watch mo...
youtube.com

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018