Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the LewyBodyDementia.ca Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.


LewyBodyDementia.ca
LewyBodyDementia.ca
Balance, stability and strength are all compromised with LBD, typically. This reduces mobility and self-direction greatly, which often leads to great frustration. We used a walker/rollator, but it had significant limitations: my LO tended to lean forward and almost run to keep up with it, and her balance was off, so we had to keep hands-on all the time. I am not endorsing this new product personally, because I have not put my own hands on it -- but LifeGlider seems to solve several problems. It's similar to something I'd hoped to invent myself, a "jolly jumper" for adults, on wheels, that'd allow full standing mobility without risk of collapse. This seems a great improvement on my idea, and is actually in production for what I believe is about $800USD.
- It's basically a walker that you stand in, backwards, that has a bicycle seat at the back, and a seat belt to keep you always centred in the right place. It might help some here, and is worth discussing with your occupational therapist.
- It was new to me until very recently, and I look forward to seeing this develop, and whether it could work for some in our LBD community. And if you've used it, I'd be interested to know how you fared with it.
- Strength to all! Timothy Hudson
https://www.mylifeglider.com/
LewyBodyDementia.ca
LewyBodyDementia.ca
Activity is even more difficult to maintain, especially with isolation increasing for so many. My loved one found Dancing with Parkinson's Canada to be transformative. We attended the program, in person, in Toronto, which was exceptional -- I've linked to them earlier. In addition to their fabulous, free, daily, seated or standing online video dance classes, that are perfect for many with LBD, there's more available from the New York group who pioneered many of the concepts.
- You can sign up below. I'm 100% behind both of these groups, and found it to be the most profoundly moving positive element through the long dark of Lewy.
- Strength to all! Timothy Hudson
https://danceforparkinsons.org/resources/dance-at-home
LewyBodyDementia.ca
LewyBodyDementia.ca
Lewy Science: COVID presents those living with Lewy Body Dementia with unique, and extra challenging elements. Interesting research makes these points, among many others:
1. The physical, cognitive and neuropsychiatric challenges associated with dementia with Lewy bodies make people particularly vulnerable to COVID-19.
2. Adverse effects may also occur from social isolation, the under-treatment of existing DLB related symptoms/problems and the negative impact on caregivers.
3. A vigilant multi-disciplinary approach is needed to meet the health and psychosocial needs of people with DLB and support family caregivers.
Very interestings points are raised throughout the short paper. Read the whole article from Geriatric Psychiatry, with researchers from Newcastle University
Stay healthy, and as always, strength to all! Timothy Hudson
http://www.lewybodydementia.ca/wp-content/uploads/2020/10/The-challenges-of-COVID-19-for-people-with-dementia-with-Lewy-bodies-and-family-caregivers1.pdf
LewyBodyDementia.ca
LewyBodyDementia.ca
Free LBD Online Video Info Session: Sat. Oct 17, 10am EST.
An workshop for care partners of persons living with Lewy Body Dementia, addressing physical, cognitive and emotional symptoms of LBD and discuss a range of supportive care strategies.
- The session will be hosted on Zoom. Once you register for the session, you will receive a link with instructions on how to connect. It's open to anyone, anywhere, worldwide
- Hosted by Alzheimer Durham -- interactive sessions are well worth checking out. Strength to all! Timothy Hudson
https://www.eventbrite.ca/e/manoeuvring-through-the-maze-of-lewy-body-dementia-registration-118343597887
LewyBodyDementia.ca
LewyBodyDementia.ca
Hallucinations in LBD can be exactly the same type that many with Parkinson's Disease experience.
- This video has some interesting perspectives from individuals who experience hallucinations and delusions. I like that the doctor treats all respectfully, and doesn't try to "correct" them. Although I often went along with some delusions my loved one had, this doctors approach, to just reassure, and say they're side effects of medications may work very well for some people.
- An interesting series of insights to what people can experience is presented here. Strength to all! Timothy Hudson
https://www.youtube.com/watch?v=Gz2db91Ub54
LewyBodyDementia.ca
Hallucinations and Parkinson's with Dr. Friedman
The topic of Hallucinations in people with Parkinson's with Dr. Friedman
youtube.com
LewyBodyDementia.ca
LewyBodyDementia.ca
For carers, transitions are commonly unwelcome, traumatic elements of life with LBD. And all to frequent.
- For me, personally, I did end up far short of transcendence, but I definitely found meaning and purpose during and after my Lewy journey. Despite the most profound outcome being the eventual death of my loved one, this period led to personal growth, insight, increased compassion and acceptance of, at least, some things, and the belief that I could weather storms I previously would've thought impossible.
- This article might help some of us in the darkest periods provide hope that when all is done, there is some positive potential, no matter how unwelcome the source. I found it resonated with me.
- Strength to all! Timothy Hudson
https://www.theatlantic.com/family/archive/2020/09/major-life-changes-happen-clocklike-regularity/616243/?utm_source=pocket-newtab

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated September 21, 2018