Some people prefer Facebook more than websites. In the interests of broader public education, a new Lewy Body Dementia page on Facebook has been launched. Whenever I see something that is significant or valuable to the community, it will be posted there. Every post will be personally analyzed to ensure a higher level of trust and legitimacy and will have a summary or comment to allow very quick scanning, to keep the page easy to search, and to save you time in case a specific article is not going to be what you’re looking for.

Below, you’ll find the five most recent posts, which is automatically updated. There is a great deal of online content that is specifically intended to manipulate, provoke, deceive or get visibility for the wrong reasons. Finding, reading, researching, and analyzing each article takes significant time, and I want only the best and most trustworthy to appear.

Click the Facebook page and “like” it to see most of them on your Facebook timeline as they are added. I will ensure that this is never overwhelming, off-topic, or insensitive.
LewyBodyDementia.ca4 days ago
Pharmaceutical companies are abandoning development of dementia drugs after numerous failed or inconclusive outcomes of drug trials. Pfizer, Axovant, Shire, Acorda and Biogen all have changed their plans recently. No wonder why: it's exceptionally expensive, and conclusively positive results are rare at best, and typically absent.
> There's some positives as well, with Denali and Takeda creating a working partnership for development.
> But I continue my song about focusing on education, awareness, care and understanding -- the more the drug tests fail, the more strongly I feel that there are other, much less expensive options to make the biggest difference.
> Here's to all the carers out there, making the biggest difference every moment of every day. Strength to all! Timothy Hudson
LewyBodyDementia.ca5 days ago
Choking, coughing, and difficulty swallowing may indicate aspiration is occurring, which is where some fluids, saliva and food may be going into the lungs instead of the stomach when swallowing. This can be due to many things, and needs to be actively investigated, since it can have extremely serious consequences.
> A speech-language pathologist or other specialist may do a swallowing test and evaluate for dysphagia, difficulty swallowing. One common treatment is to use thickener, to slow the time the swallowing is initiated to when the food/drink will get to the area of the throat where muscles must choose whether to direct to the trachea (to lungs) or esophagus (stomach). With a thicker fluid, it goes slower, and may allow the autonomic reaction to be more effective.
> This video keeps the concepts in common language, and nicely explains the idea behind using thickener. Specialists are often rushed, and may not explain what they're recommending you do, and this might give you a better idea about the theories behind the treatment.
> Always be hyper-vigilant about swallowing, and advocate for whatever is possible to make it most efficient, while retaining quality of life.
> Strength to all! Timothy Hudson
The use of thickener for people with dysphagia. What's it all about?
A video to help you understand what thickener is, why it might by recommended and what factors need to be considered when deciding if it's the right treatmen...
LewyBodyDementia.ca1 week ago
Raising awareness is critical to the future. My wonderful friend and stunningly-accomplished accomplice in LBD-awareness building, who founded The Lewy Body Society in the UK, is interviewed in this piece. She raises many valid points, and in addition, the Society funds useful, forward-thinking research as well.
> Each one of us is doing our part to make more people aware of the condition, and every single voice is raising the chorus to the tipping point where Lewy Body will no longer be the "what's that" dementia. Towards that day!
> Strength to all! Timothy Hudson
LewyBodyDementia.ca2 weeks ago
Lewy Science: Proteomics analyses could present new opportunities to diagnose and treat dementias.
Sometimes, it's best to leave the explanation to the authors, in this case, from the journal Brain. Study tested specific proteins in synapses and found that several led the researchers to be able to differentiate between "Parkinson’s disease dementia, dementia with Lewy bodies, and Alzheimer’s disease from controls with high sensitivity and specificity.... Our results suggest that these particular synaptic proteins have an important predictive and discriminative molecular fingerprint in neurodegenerative diseases and could be a potential target for early disease intervention."
> Of more than 10,000 proteins in the brain, they identified 851 of which were synaptic proteins, and levels of 25 of those were significantly altered in the various dementia groups.
> Sooooo, what does that mean? I interpret it to imply that they've discovered specific proteins which could, in future, be treated in pre- and early-disease phases, and diminish the impact of the conditions, and with the ability to specify individual disease agents. That'd be cool!
> In the meantime, strength to all. Timothy Hudson.
LewyBodyDementia.ca2 weeks ago
Another one bites the dust. Highly anticipated drug for Levy Body Dementia, Axovant's Intepirdine, is abandoned as it has has no better performance than a placebo.
> I wish, perhaps more than anything, that the countless treasure chests that are spent to fund drug research would, instead, be funnelled into education, care, and support. Imagine what a different experience it would be for you if that was the case.
> Towards a new approach. Strength to all! Timothy Hudson
LewyBodyDementia.ca2 weeks ago
Nice advice column with great reminders and tips for anyone with dementia who needs to have an in-patient procedure done, and also some insight into the manipulation people with LBD may appear to have. A surprisingly insightful article, and worth a quick scan.
> Strength to all! Timothy Hudson

I am not entirely sold on the idea of Facebook, but I absolutely agree it is critical to get information out to the broader public. If this doesn’t work well, it will be retired. Make sure you join a support group for Lewy Body Dementia — there are options online, by email, phone or in-person.

Strength to all!
Timothy Hudson

Updated May 7, 2017